Commissioning map of children's palliative care

How well is each CCG and local authority commissioning palliative care for children in England?

Together for Short Lives has published maps which show, for the first time, how well palliative care for children and young people with life-shortening conditions is being planned and funded by the NHS and local authorities in England.You can read more about what we asked and what we found overall in our report and our FAQs.

Clinical Commissioning Groups

In England, healthcare is planned, funded and monitored (a process known as “commissioning”) by organisations called clinical commissioning groups (CCGs). Every area in England has one and there are 209 in total. Explore the map for yourself and find out whether your CCG is commissioning lifeline palliative care for children and young people with life-shortening conditions. Click on your local CCG to find out (i) if they say they are commissioning children’s palliative care and (ii) what star rating we have given them. Together for Short Lives has rated each CCG according to how many elements of children’s palliative care, including end of life care, short breaks and bereavement care, they are commissioning. The more they commission, the better their rating and the darker colour they appear.

Access our CCG map hereStar rating key:

CCGkey

 

 

 

Please note that CCGs which did not respond to our information requests have no rating. These areas are unshaded on the map.

The data we publish takes into account all responses we received by midnight on Sunday 14 August 2016. If you would are a CCG and would like to update this data please contact patrick.mckenna@togetherforshortlives.org.uk

Local Authorities

Children’s palliative care embraces physical, emotional, social and spiritual elements and focuses on enhancing of quality of life and quality of death for children and young people. Because social care is commissioned by England’s 152 upper-tier local authorities, they have a crucial part to play in making sure children and young people with life-shortening conditions and their families get the lifeline care they need. Therefore, we have also produced a map of every local authority in England which shows how each one is performing in terms of children’s palliative care.The more they commission, the better their rating and the darker colour they appear.

Access our local authority map here Star rating key:

CCG key

 

 

 

Please note that local authorities which did not respond to our information requests have no rating. These areas are unshaded on the map.

The data we publish takes into account all responses we received by midnight on Sunday 14 August 2016. If you would are a local authority and would like to update this data please contact patrick.mckenna@togetherforshortlives.org.uk 

In publishing these maps, we hope to take a constructive and collaborative approach with government, NHS England, CCGs and local authorities to: 

  • identify local gaps in commissioning
  • highlight and celebrate those areas which are planning effectively and funding children’s palliative care equitably and sustainably - and publicise how they are doing it
  • make the public aware of the steps which we would like CCGs and councils to take to jointly commission and fund children’s palliative care - and encourage the public to write to their CCGs and local authorities
  • encourage the public to write to their MPs to ask them to press their CCGs and local authorities to jointly commission children’s palliative care
  • make sure that commissioners are aware of the help that Together for Short Lives can offer them in making sure that seriously ill children can access the palliative care they need.

How have we created the maps?

The maps show our analysis of a series of freedom of information (FOIs) requests which we made of CCGs and local authorities during April 2016. You can read more about what we asked and what we found overall in our report.

We have also published our full data tables which show what each CCG and each local authority has told us:

Download the CCG data we have collected here.

Download the local authority data we have collected here.

 How have we calculated the star ratings?

Together for Short Lives has calculated its star rating of CCGs and local authorities based on the number of 'yes' answers which they have given to the questions we asked them. The more 'yes' answers given, the higher their rating:

  • 0% of 'yes' answers = 0 stars
  • 1 - 20% = one star
  • 21% - 40% = two stars
  • 41% - 60% = three stars
  • 61% - 80% = four stars
  • 81% - 100% = five stars

I am not satisfied with my CCG’s or my local authority’s approach to commissioning children’s palliative care. What can I do?

There are some very simple steps which you can take to press your local commissioners to improve the way they plan and fund children’s palliative care. Please write to or email:

It looks like my CCG and local authority are doing well. What can I do?

We are very keen that good practice in commissioning children’s palliative care is celebrated and that other CCGs and local authorities get to hear about it. Why not write to your local MP to ask them to help with this? Download a template letter here. You can generate an email to them here.