Together for the 49,000 +
Help shape our strategy for children’s palliative care: What should great children’s palliative care look like in 2028?
Together for Short Lives wants to improve the quality of life and the quality of end of life care for children and young people with life-limiting and life-threatening conditions. We want to ensure that their families are supported, informed and empowered on their journey with their child.
That’s why Together for Short Lives has begun a conversation to engage and listen to families, young people, professionals, service providers and those with an interest in children's palliative care to help us develop our strategy from 2018 and beyond.
Help shape our strategy
The first phase of our strategy consultation was completed in May, and having considered the responses, our own resources, and the work of others, we have developed a Strategy Framework August 2017. We have outlined the framework across three areas:
- What we want to achieve;
- How we will achieve that;
- How Together for Short Lives will work.
The Framework also includes see a summary of the responses to our first phase of consultation.
We are inviting on comments on this Strategy Framework August 2017 as it is vital that our strategy is informed by those we seek to work with and support. Please share your feedback on our framework – specifically on ‘What we want to achieve’ and ‘How we will achieve this.’ The quickest way to share feedback is by completing this very short online survey by 22 September.
Once we’ve gathered your responses we will then consider what we’ve heard with a view to sharing our final strategy for 2018 onwards in the New Year.
In March, this year we began a process of open engagement to help inform Together for Short Lives’ strategy from 2018 onwards. We wanted to hear from families, young people, professionals, service providers and those with an interest in children's palliative care to help us shape our strategy. We asked you three broad questions:
- What does great children’s palliative care look like in 2028?
- What needs to happen to get there?
- What could Together for Short Lives’ role be in helping to achieve that?
We received a fantastic response to these questions, with over 100 responses to our online questionnaire, 15 blogs and facilitated meetings including with our children’s hospice, statutory sector, family, and charities reference groups.
Thank you for taking time to help us in this work.
Your blogs helped informed our draft strategy
Over the last few months Together for Short Lives has shared your ideas, views and ambitions through blogs, newsletters and social media.
So far, we've gratefully received and published blogs by:
- Barbara Gelb OBE, Chief Executive of Together for Short Lives
- Dame Elizabeth Fradd, Patron of Together for Short Lives, and Vice President of Rainbows Children's Hospice, as well as Vice President of Nottingham University.
- Sacha Langton-Gilks, DD's Mum (17.11.95-14.8.12) & Lead Champion of The Brain Tumour Charity's Headsmart campaign
- Katie Boswell, Deputy Head of Charities for NPC
- Rachel Wright, Nurse, Writer and Mum
- Andrew W Lewis, Research Associate, University of York
- Mansi Shah, Co-founder, Happy Feet Foundation, India
- Sabine Kraft, Director, International Children's Palliative Care Network
- Zipporah Ali, MD, the Kenya Hospices and Palliative care Association
- Kenneth Pitch, Medical Director of the Pediatric Palliative Care Program, the CS Mott Children's Hospital in Michigan
- Rut Kiman, Consultant in Children's Palliative Care, Buenos Ares, Argentina
- Ross Drake, MD, from Starship Child Health, New Zealand
- Julie Ling, CEO, European Association for Palliative Care
- David Pastor, CEO, Claire House Children's Hospice
Keeping in touch
Please do get in touch if you have any queries, or if you have any ideas on how we can improve our engagement in developing a new strategy for 2018 and beyond. Email us here