Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally. For all our latest news stories you can also see our news pages, or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Nov 15 2017
Why the spotlight must stay on seriously ill children
Dr Sarah Mitchell, a GP in Birmingham who has written a local palliative care strategy for the city, reflects on her appearance on BBC 5 Live Investigates (12 November 2017) to talk about Together for Short Lives’ ‘Commissioning 2017’ report. She also emphasises why it is crucial that NHS organisations across England prioritise planning and funding children’s palliative care in their local strategies.
Nov 10 2017
Family support volunteering at East Anglia’s Children’s Hospices
Jess and Hugh from East Anglia’s Children’s Hospices introduce their approach to running a Family support Volunteering service.
Oct 20 2017
Flexible paid leave is the least we should do for bereaved parents
Together for Short Lives welcomes the Parental Bereavement (Leave and Pay) Bill, but calls for the leave to be flexible, so parents can have time off when they feel they need it most.
Oct 14 2017
Diana Nurses - What A Difference A Day Made
I think many of us remember where we were on 31 August 1997, when the news of the tragic, sudden death of Diana, Princess of Wales shocked the nation, and in fact, the world.
Sep 18 2017
Making the NICE Guidelines real
Doug and Ben Morris share their hopes for the new NICE Quality Standard and what needs to happen to make the guideline a reality for children, young people and families.
Sep 12 2017
Shaping the NICE quality standards
NICE develop quality standards following the publication of key guidelines – in this case standards for the NICE End of Life Guideline for infants, children and young people with life-limiting conditions.
Sep 04 2017
One chance to get it right: Organ Donation Week
The death of a child is the hardest pain to bear; working for the last fourteen years with people, facing the death of a child, or adult loved one, has shown me the courage and strength that families can muster at the most difficult time they will ever face. Hear from Angie Scales, Lead Nurse; Paediatric and Neonatal Donation and Transplantation at NHS Blood and Transplant.
Aug 14 2017
Resolving recruitment and retention
We’re heading for a crisis in children’s palliative care nursing. Children’s hospice services have an important role to promote themselves as attractive employers. We’ve provided a snapshot to share some of the innovative ways children’s hospice organisations are meeting recruitment challenges head on.
Aug 03 2017
A time for reflection
The recent media coverage of Charlie Gard’s has given rise to heightened interest and discussion about children’s palliative care (both here and abroad). The case has created a high level of public consciousness, but sadly this has also led to a lot of misunderstanding or misrepresentation of children’s palliative care by some.
Jul 10 2017
A rough guide to the NICE guideline
Delegates at our recent conference heard about the development of the new NICE guideline for End of life care for infants, children and young people with life-limiting conditions. Dr Harrop has prepared a guide to the different resources accompanying the guidance and available through the NICE website.