Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally. For all our latest news stories you can also see our news pages, or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Sep 18 2017
Making the NICE Guidelines real
Doug and Ben Morris share their hopes for the new NICE Quality Standard and what needs to happen to make the guideline a reality for children, young people and families.
Sep 12 2017
Shaping the NICE quality standards
NICE develop quality standards following the publication of key guidelines – in this case standards for the NICE End of Life Guideline for infants, children and young people with life-limiting conditions.
Sep 04 2017
One chance to get it right: Organ Donation Week
The death of a child is the hardest pain to bear; working for the last fourteen years with people, facing the death of a child, or adult loved one, has shown me the courage and strength that families can muster at the most difficult time they will ever face. Hear from Angie Scales, Lead Nurse; Paediatric and Neonatal Donation and Transplantation at NHS Blood and Transplant.
Aug 14 2017
Resolving recruitment and retention
We’re heading for a crisis in children’s palliative care nursing. Children’s hospice services have an important role to promote themselves as attractive employers. We’ve provided a snapshot to share some of the innovative ways children’s hospice organisations are meeting recruitment challenges head on.
Aug 03 2017
A time for reflection
The recent media coverage of Charlie Gard’s has given rise to heightened interest and discussion about children’s palliative care (both here and abroad). The case has created a high level of public consciousness, but sadly this has also led to a lot of misunderstanding or misrepresentation of children’s palliative care by some.
Jul 10 2017
A rough guide to the NICE guideline
Delegates at our recent conference heard about the development of the new NICE guideline for End of life care for infants, children and young people with life-limiting conditions. Dr Harrop has prepared a guide to the different resources accompanying the guidance and available through the NICE website.
Jun 09 2017
Children's Palliative Care is in good shape, but faces great challenges, says Claire House CEO
Jun 07 2017
Turning up the volume
We look back and reflect on how this year's Children's Hospice Week turned up the volume, amplified families' voices and changed people's perceptions of children's palliative care
May 24 2017
The role of technology in children's palliative care
Simone is the Chief Executive of the charity Lifelites, which donates and maintains assistive and inclusive technology for terminally ill and disabled children at every children’s hospice service across the British Isles.
May 22 2017
Dealing with diagnosis
The response from our large circle of family and friends to Leah's diagnosis was varied. The most helpful responses were from those who engaged with us and found practical ways to show us that they cared.