Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally. For all our latest news stories you can also see our news pages, or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Jul 22 2016
What the new government means
Amid the incredible series of events triggered by the vote to leave the EU, the UK has a new Prime Minister and government. Labour also faces a choice about its leader. What does this mean for children and young people with life-shortening conditions?
Jul 14 2016
We have to fight for everything
Being nurses couldn’t prepare Onessa and Jaroume Cariazo when they were told their son Elijah had been diagnosed with myotubular myopathy and was expected to live only a few weeks.
Jul 12 2016
How to make networks more effective
A new report exploring the impact of networks, 'Strategic Development of Children’s Palliative Care Networks for Better Health and Care Outcomes through Improved Commissioning', was launched at our recent network summit.
Jul 08 2016
Welcome to my world
Hear from the incredible Steph as she blogs about the importance of families like hers being supported to give their seriously ill children the best care, without having to reach crisis point to achieve it.
Jun 27 2016
Through my eyes
Jane's son Callum suffered oxygen deprivation at birth resulting in severe brain damage. Jane explains how difficult it was caring for Callum through his life, and how getting the right support helped create happy family memories that have endured while the hardships fade into the past.
Jun 20 2016
Fundraising regulation: 3 things I've learnt
Last week we met with Gerald Oppenheim from the Fundraising Regulator, and Vicki Bowles, a Barrister at Stone King to discuss how new fundraising regulations are shaping up.
Jun 20 2016
Member survey feedback
Thank you to everyone who took part in our member survey earlier this year. Here we outline what our members told us and what we're planning as a result.
Jun 20 2016
Towards a Service Outcome Framework
A group of children’s hospices have come together to work towards agreeing a pragmatic set of service outcomes for children’s hospice services.
Jun 17 2016
Reflections on Scottish election
In the first of a series of guest blogs reflecting on the outcome of May's elections, Maria McGill, CEO of CHAS looks at what the election result means for children's palliative care in Scotland.
Jun 10 2016
Making partnerships work
David Burland, CEO of Children's Hospice Shooting Star Chase explains how the Hospice Quality Partnership is helping hospices across the country share procurement and drive down costs