Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally. For all our latest news stories you can also see our news pages, or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
May 27 2016
You're not on your own
Lizzie Hornby's son William has Edwards Syndrome and needs constant care. It can be difficult and isolating, and Lizzie explains how connecting with other families in similar situations and mutually supporting each other has been a lifeline.
May 13 2016
It takes a village
Hospitals and libraries across Scotland will be hosting a new art exhibition ‘It Takes a Village’ as part of Death Awareness Week Scotland.The exhibition recognises the role we all play in the lives and deaths of others.
May 04 2016
Talking about childhood death
There is only one thing for certain in life, and yet still we find it hard to discuss death, especially when we try to talk about the death of a baby, child or young person. If we are to prepare properly for bereavement, then we all need to get better at having these conversations.
Apr 26 2016
New Symptom Control Manual
Dr Sat Jassal introduces the new edition of the Rainbows Symptom Control Manual, which for the first time ever is available in a fully digital, online edition
Apr 19 2016
4 key challenges for end of life care
Together for Short Lives CEO Barbara Gelb spoke this morning at the Westminster Health Forum on improving the quality of care at the end of life through standards, guidance and regulation. Her speech outlined four key challenges for children's palliative care provision.
Apr 13 2016
Spend time on babies not bureaucracy
Together for Short Lives Chief Executive Barbara Gelb addresses concerns about services facing inconsistent and increasing regulatory demands and asks what would you consign to the red tape dustbin.
Apr 08 2016
Highlighting importance of short breaks
Jane Houghton from Together for Short Lives recently attended the House of Commons Health Committee hearing in Manchester to highlight implications of funding cuts for children’s palliative care.
Mar 16 2016
Future education of children's nurses
Katrina McNamara looks at some of the steps being taken to ensure there are enough nurses with the right skills to deliver essential care for children and young people in the future.
Mar 16 2016
Highlights from GDUK symposium
Julia Hodgson attended the Genetic Disorders UK Leadership Symposium to highlight the work of our Transition Taskforce and heard about some exciting developments in support for people with genetic conditions.
Mar 14 2016
Why short breaks are our lifeline
15 year-old Ben Morris has Spinal Muscular Atrophy, a neurological condition that causes weakness to the muscles. His father Doug explains why Ben and his family rely on short breaks