Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally. For all our latest news stories you can also see our news pages, or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Mar 08 2016
Improving care for children in Wales
One of the challenges that has always faced children’s specialties is how they fit within the wider health service. Children are small in number, but the range and complexity of services they need is at least as great as those of adults.
Mar 07 2016
Transforming care in Northern Ireland
Children’s palliative care takes many forms. Delivering a specialist service to the children with many and diverse conditions which puts them in need of palliative care is challenging, time consuming, emotionally draining and incredibly fulfilling.
Mar 01 2016
Dusting ourselves down and living
Amanda Harrison is the mother of James, who has Batten Disease. Last night they visited 10 Downing Street to speak on our behalf, and Amanda recounts her very special adventure with James.
Feb 23 2016
Policy insight: February
NHS England’s approach to future state funding for children’s palliative care could be undergoing an important shift. Shaun Walsh, Director of External Affairs, takes stock and describes 10 ways in which we are working to shape a new funding approach.
Feb 23 2016
Why Budget 2016 will be crucial
In a previous blog, I considered the looming crisis in children’s palliative care funding. Chancellor of the Exchequer George Osborne has a wonderful opportunity to avert this crisis when he publishes the government’s Budget on 16 March.
Feb 19 2016
Hospice CQC inspections
Recent Together for Short Lives and Hospice UK training events have given CQC inspectors greater insight into children's hospice services.
Feb 04 2016
Bereaved parents shouldn’t have to fight
Losing a baby or child is always immensely distressing – and a lack of joined up bereavement care is leaving many parents without adequate support when they need it the most.
Jan 22 2016
Policy insight: January
Shaun Walsh, Director of External Affairs at Together for Short Lives, considers what the past month's policy developments mean for children with life-limiting conditions, their families and those who care for them.
Jan 18 2016
Our community engagement work
Our Community Engagement programme aims to empower communities to be actively involved in supporting families caring for a child with a life-shortening condition, and to better meet the needs of this growing population of children.
Jan 13 2016
A crisis in palliative care for children?
The growing numbers and needs of children with life-shortening conditions is in urgent need of public funding.