Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally. For all our latest news stories you can also see our news pages, or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Mar 16 2016
Future education of children's nurses
Katrina McNamara looks at some of the steps being taken to ensure there are enough nurses with the right skills to deliver essential care for children and young people in the future.
Mar 16 2016
Highlights from GDUK symposium
Julia Hodgson attended the Genetic Disorders UK Leadership Symposium to highlight the work of our Transition Taskforce and heard about some exciting developments in support for people with genetic conditions.
Mar 14 2016
Why short breaks are our lifeline
15 year-old Ben Morris has Spinal Muscular Atrophy, a neurological condition that causes weakness to the muscles. His father Doug explains why Ben and his family rely on short breaks
Mar 08 2016
Improving care for children in Wales
One of the challenges that has always faced children’s specialties is how they fit within the wider health service. Children are small in number, but the range and complexity of services they need is at least as great as those of adults.
Mar 07 2016
Transforming care in Northern Ireland
Children’s palliative care takes many forms. Delivering a specialist service to the children with many and diverse conditions which puts them in need of palliative care is challenging, time consuming, emotionally draining and incredibly fulfilling.
Mar 01 2016
Dusting ourselves down and living
Amanda Harrison is the mother of James, who has Batten Disease. Last night they visited 10 Downing Street to speak on our behalf, and Amanda recounts her very special adventure with James.
Feb 23 2016
Policy insight: February
NHS England’s approach to future state funding for children’s palliative care could be undergoing an important shift. Shaun Walsh, Director of External Affairs, takes stock and describes 10 ways in which we are working to shape a new funding approach.
Feb 23 2016
Why Budget 2016 will be crucial
In a previous blog, I considered the looming crisis in children’s palliative care funding. Chancellor of the Exchequer George Osborne has a wonderful opportunity to avert this crisis when he publishes the government’s Budget on 16 March.
Feb 19 2016
Hospice CQC inspections
Recent Together for Short Lives and Hospice UK training events have given CQC inspectors greater insight into children's hospice services.
Feb 04 2016
Bereaved parents shouldn’t have to fight
Losing a baby or child is always immensely distressing – and a lack of joined up bereavement care is leaving many parents without adequate support when they need it the most.