Holly’s story: “Her twin sister will always be missing her other half.”
This is Holly’s story, told by her mum Stevi… “Holly required 24/7 care, she couldn’t...
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.
Bethany’s story: “My whole life is taking care of her”
This is Bethany’s story, told by her mum Charlotte… 12 year old Bethany has been diagnosed with FOXG1, a rare neurological and developmental disorder. She has also been diagnosed with microcephaly, epilepsy, hypotonia and cannot walk or sit unaided. Bethany...
Jaxson’s story: Every obstacle and fight is worth it
Jaxson is 17 months old and lives in South-East London with his two siblings, Mum...
Elisa’s story: “Sometimes it feels like you have to prove your child’s worth because they’re disabled.”
Elisa’s story, told by her dad Dan… “Elisa was born with Cerebral Palsy. She also...
Abbie’s story: “It’s so nice knowing she’s safe and happy. It means I can relax.”
For mum Lisa, East Anglia’s Children’s Hospices (EACH) has been an “absolute saviour” for her...
George’s story: “It felt like nobody was listening to me”
“George was born six weeks early on 27 December. We knew from the moment he...
Dylan’s story: Priceless
Dylan was born with Scimitar Syndrome. His mum Helene discusses life with her special boy...
Osian’s Story: “Sometimes I think he was looking directly into your soul”
“Osian was full of joy and magic, and that is how we will always remember...
Libby’s story: Our hospice is a massive part of our lives
On Friday 22 September, a team of tenacious trekkers set off on an epic fundraising...