Caring for your child at end of life – family guide
We know that every family’s experience of losing a child is unique and always devastating. Some will care for a child with a life-limiting illness...
Here to support families caring for a life-limited or life-threatened child find the support they need
Are you a parent or carer who looks after a child or young person who has a life-limiting or life-threatening condition? If you have questions, need support or just want someone to talk to, please contact our Together for Families Helpline free on 0808 8088 100. Alternatively click on the Live chat button in the bottom right of the screen.
You can also email us at helpline@togetherforshortlives.org.uk with your helpline questions and someone will respond as soon as possible. Our Helpline is also there to support professionals who care for children, young people and families.
We know that every family’s experience of losing a child is unique and always devastating. Some will care for a child with a life-limiting illness...
There are a number of benefits and tax credits that you may be entitled to. Some benefits can be paid because your child is disabled...
If you are somebody that loves and cares for a child with a life limiting or life threatening illness, join our online Family group on Facebook.
Elisa’s story, told by her dad Dan… “Elisa was born with Cerebral Palsy. She also had epilepsy, dysphagia, was registered blind and deaf and had...
This is Holly’s story, told by her mum Stevi… “Holly required 24/7 care, she couldn’t do anything for herself. Due to twin-twin transfusion syndrome, she...
This is Bethany’s story, told by her mum Charlotte… 12 year old Bethany has been diagnosed with FOXG1, a rare neurological and developmental disorder. She...
Jaxson is 17 months old and lives in South-East London with his two siblings, Mum Laura and Dad Jim. Jim and Laura were told that...
Check our list of questions received through the Together for Families helpline in the past
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