Hearing the news that your child has a life-shortening condition and is likely to die young is completely devastating. For tens of thousands of families in the UK this is the reality. These children have very complex and unpredictable conditions and often need round the clock care, seven days a week.


We run a number of fundraising appeals throughout the year to raise vital funds to help make families’ lives easier, so that they can make the most of their precious time together. 

You can find out more about our appeals below.