Dying Matters calls for a new approach to supporting end of life care

New research from Dying Matters, launched this Dying Matters Awareness Week, shows that the majority of people would be willing to offer practical help to friends and neighbours dealing with death, dying and bereavement.

 

  • Six in ten say they would feel comfortable giving a pain-relief injection to someone who was dying and wanted to stay at home, after receiving training and with doctor or nurse supervision the first few times.
  • Only 16% think caring for the dying is only a matter for professional health and social care workers

Dying Matters research found that 39% of British adults say they would feel comfortable giving a pain-relief injection to someone who was dying and wanted to stay home, after receiving some training and with no additional support. This rises to 61% with doctor or nurse supervision the first few times. The opinion poll was undertaken by ComRes in April 2017.

Most people who express a preference say they would rather be at home when they die, yet currently almost 50% of deaths occur in hospital. Lack of access to pain and symptom relief around the clock can both result in emergency admissions and prevent people from being able to leave hospital, instead of being at home when they die.

The survey also found majorities of people both disagreeing that dying is only a matter for professional health and social care services (70%), and agreeing that they be willing to offer practical help and support other people who are dying (74%) – as well as saying they would expect their friends and neighbours to support them if they were caring for a relative dying at home (61%). Only 16% agreed that there is currently enough support for people dealing with death dying and bereavement, with 55% disagreeing.  78% of British adults think that caring for someone dying at home would be easier if family, friends and neighbours offered practical help.

Claire Henry, Chief Executive at Dying Matters said:

When you are caring for someone who wants to be at home when they die, small things can make a huge difference. We know that an offer to walk the dog, mow the lawn or give someone a lift can make caring for a loved one as they die so much easier. This survey shows that people are willing to do more than that, and are even willing to get involved in providing pain relief, if they are given training and support. It is always hard to lose someone close to us, but dying in the familiar surroundings of home can make it less upsetting for everyone. A combination of professional medical and social care, services like hospice at home, and people’s willingness to help can provide the end of life care we all need, as we get once chance to get this right”
 
Linda Magistris, Founder of the Good Grief Trust, cared for her partner at home after he was diagnosed with cancer, and says that help from people around her made it possible to spend as much time as possible with him. She said:

He didn't want a hospital bed, or a lot of fuss, so in order to make him comfortable and calm, we were running around trying to get the equipment and medication, all taking time out of the precious moments we had together. Every minute is so important, every moment is treasured, help and support is crucial and makes those final days a little easier to bear.


Dying Matters is calling for a new approach to supporting end of life care that takes people’s willingness to help into account. Says Claire “Dying, death and bereavement are everybody’s business. With numbers of people dying each year predicted to grow by nearly 15% over the next 18 years, we need a new approach which doesn’t just rely solely on health and care services but recognises and empowers carers and communities to provide the care they want to. We can all do something to help, and shouldn’t be worried about asking: ‘What can I do?’” 
 
 
Notes:

  1. ComRes interviewed 2,054 British adults online between 7th and 9th April 2017. Data were weighted to be demographically representative of all British adults aged 18+. Data tables can be found at www.comresglobal.com
  2. Pain and symptom relief has a significant impact on people’s quality of life when they are dying. A 2016 survey for Dying Matters found that being pain free was the highest-ranked factor when people were asked to define a ‘good death’.
  3. Dying Matters Awareness Week runs from 8-14 May. Hundreds of events are taking place across the county – please see here for more information www.dyingmatters.org/page/map-awareness-week-events-2017
  4. There will also be daily Twitter chats from 1-2pm using the hashtag #WhatCanYouDo

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