See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
'Children's Hospice Week' news stories:
Mar 07 2017
Let's turn up the volume for Children's Hospice Week!
Children's Hospice Week will be turning up the volume on children’s palliative care to raise awareness about the needs of seriously ill children and to celebrate all the lifeline services that children and families rely on.
May 27 2016
When Claire had to say goodbye to her little boy Jacob, her extended family were able to share in this precious time thanks to their local children’s hospice.
May 26 2016
Our work in Parliament to support Children’s Hospice Week
During Children’s Hospice Week we are working with MPs to raise awareness of the challenges facing children with life-shortening conditions across the UK.
May 26 2016
Ruby Backus was diagnosed with Sandhoff Disease – a terminal condition – when she was 16 months old. Dealing with the condition was tough on Ruby's mum Nikki, and twin brother Sam, and the family found the support they needed from Acorn's Children's Hospice. "I do not know how we would have got through without them," says Nikki.
May 25 2016
Two-year old Rhys has DiGeorges, a rare genetic condition that causes him to suddenly stop breathing and can cause heart defects and developmental difficulties. The support Rhys and his family receive from Demelza Children's Hospice and Community team helps mum Naomi cope with tough times and build good memories.
May 24 2016
This Children's Hospice Week, we're sharing a special family's story. Mum Hayley explains how daughter Holly's complicated medical needs are integrated into the family, and the essential support they receive from their local hospice.
May 23 2016
Little Euan has chronic lung disease & can need oxygen to help him breathe. Mum tells us what a lifeline Julia's House has been, this Children's Hospice Week.
May 23 2016
Help put families first this Children’s Hospice Week
Together for Short Lives is calling on the public to support Children’s Hospice Week to shine a light on children with life-shortening conditions and the services they need. HRH Duchess of Cambridge offers a message of support for the campaign.
May 18 2016
Share a family #ourselfie for Children's Hospice Week
Get involved in the UK's only awareness and fundraising week for children with life-shortening conditions and their families, and the hospice and palliative care services that support them.
May 15 2015
Call for fair and sustainable short break funding
Short breaks for families caring for a child who may not reach adulthood mean more than just a holiday – they provide vital respite and help families cope with the pressure of providing round the clock care for their children.