See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
'Policy news' news stories:
Feb 29 2016
Better palliative care needed for children in Northern Ireland
Northern Ireland Children’s Hospice and Together for Short Lives are calling on the Assembly parties to commit to better care for seriously ill children in their election manifestos.
Feb 24 2016
New guideline to support smoother transition for young people
We welcome the new National Institute for Clinical Excellence (NICE) guidance on ‘Transition from children’s to adults' services for young people using health or social care services.
Jan 28 2016
Together for Short Lives welcomes bedroom tax ruling
Read our reaction to the Court of Appeal’s declaration that bedroom tax discriminates against disabled children needing overnight care.
Dec 16 2015
Minister offers to discuss baby mobility benefit bar
During a debate in the House of Lords last night (Monday 14 December), Lord Freud (Minister for Work and Pensions) invited Together for Short Lives to meet with him to discuss our call for seriously ill babies and young children to be given access to a key welfare benefit.
Dec 15 2015
Committee reports on the state of palliative care in Scotland
The Scottish Parliament Health and Sport Committee has published a report following its inquiry into palliative care in Scotland.
Dec 09 2015
Children’s charity backs Lords bid to overturn baby benefit bar
Major UK children’s charity, Together for Short Lives, has lent its support to peers’ bid to change the law to give seriously ill babies and young children access to a vital benefit which would help them leave their home or hospital bed.
Nov 30 2015
Support for bereaved people in poverty needs reforming, urge charities
Together for Short Lives, as part of the Funeral Poverty Alliance, has written to Baroness Altman asking her to look at the problem of funeral poverty.
Nov 25 2015
Comprehensive Spending Review: response
Together for Short Lives Chief Executive Barbara Gelb responds to the Comprehensive Spending Review
Nov 12 2015
Action needed to increase access to hospice care for Muslims
Hospices and NHS services must capture data about religion and ethnicity much more consistently from people using their services – as glaring gaps in this data are preventing effective planning of palliative and hospice services for Muslim patients and their families
Nov 04 2015
Rising numbers of children with life-shortening conditions in Scotland
The prevalence of babies, children and young people in Scotland with life-shortening conditions is rising, and an increase in palliative care services is required to meet their needs according to a new report