See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
'Policy news' news stories:
Sep 11 2017
NICE standards ‘a milestone’ for children’s palliative care
Together for Short Lives has welcomed an important new set of standards which describe what high quality palliative care is for babies, children and young people with life-limiting and life-threatening conditions.
Aug 03 2017
An open letter to Theresa May
Following heightened public interest, Together for Short Lives has written an open letter to the Prime Minister calling for urgent action on children’s palliative care.
Mar 08 2017
Forgotten Children: Chancellor’s Budget fails seriously ill children
Budget 2017 has confirmed our worst fears: only the loudest voices are being heard while the most vulnerable children in our society, and their families, are being pushed to the periphery, says our CEO Barbara Gelb
Nov 21 2016
Palliative care charities on the brink of state funding crisis
Cuts and freezes in statutory funding for children’s hospice and palliative care charities means a bleak outlook for seriously ill children and families in England.
Nov 16 2016
Children’s palliative care charity funding crisis in the spotlight
Barbara Gelb OBE, Chief Executive of Together for Short Lives, appeared on BBC Breakfast this morning to call for the government to end the children’s palliative care funding crisis.
Jul 10 2016
Public call to ensure children with short lives aren't short changed
Our new survey shows overwhelming public call to make sure that children with short lives are not short changed by the state.
Jul 06 2016
Time to make palliative care choice commitment a reality
Together for Short Lives has broadly welcomed an important new government commitment which states that children and young people in England with the most complex needs should be able to live their lives as they and their parents wish.
May 26 2016
Our work in Parliament to support Children’s Hospice Week
During Children’s Hospice Week we are working with MPs to raise awareness of the challenges facing children with life-shortening conditions across the UK.
Mar 31 2016
End the postcode lottery in provision of palliative care
A review of end-of-life care for adults has found many hospitals are failing to provide face-to-face palliative care specialists around the clock for those that need it. Together for Short Lives is keen to work with government to end this postcode lottery in provision of end-of-life care.
Feb 29 2016
Better palliative care needed for children in Northern Ireland
Northern Ireland Children’s Hospice and Together for Short Lives are calling on the Assembly parties to commit to better care for seriously ill children in their election manifestos.