See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
May 25 2016
Two-year old Rhys has DiGeorges, a rare genetic condition that causes him to suddenly stop breathing and can cause heart defects and developmental difficulties. The support Rhys and his family receive from Demelza Children's Hospice and Community team helps mum Naomi cope with tough times and build good memories.
May 24 2016
This Children's Hospice Week, we're sharing a special family's story. Mum Hayley explains how daughter Holly's complicated medical needs are integrated into the family, and the essential support they receive from their local hospice.
May 23 2016
Little Euan has chronic lung disease & can need oxygen to help him breathe. Mum tells us what a lifeline Julia's House has been, this Children's Hospice Week.
May 23 2016
Help put families first this Children’s Hospice Week
Together for Short Lives is calling on the public to support Children’s Hospice Week to shine a light on children with life-shortening conditions and the services they need. HRH Duchess of Cambridge offers a message of support for the campaign.
May 18 2016
Response to the Queen’s Speech from Together for Short Lives
Following today’s Queen’s Speech, UK children’s palliative care charity, together for Short Lives, has called on the government not to overlook the UK’s 49,000 children and young people with life-shortening conditions as it seeks to improve the life chances of disadvantaged children.
May 18 2016
Share a family #ourselfie for Children's Hospice Week
Get involved in the UK's only awareness and fundraising week for children with life-shortening conditions and their families, and the hospice and palliative care services that support them.
May 09 2016
End of life care for children unequal too
Together for Short Lives has expressed deep concern at the findings of the Care Quality Commission’s review into end of life care in England – and has highlighted how shortfalls in care for dying adults are reflected in end of life care for children and young people too.
May 06 2016
The Big Conversation
We’re supporting Dying Matters Awareness Week, running 9-15 May 2016.
Apr 29 2016
New SEND guide for families
Helping families of seriously ill children find their way through the maze of assessments, plans and services.
Apr 26 2016
Updated Symptom Control Manual published
New edition of the ‘to go’ symptom control resource for professionals working with seriously ill children has been published. For the first time the manual is available as a cloud based web resource, as well as a pdf download.