See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Mar 27 2017
Welsh Government to scrap burial charges for children in Wales
Together for Short Lives is delighted that the Welsh Government is to scrap burial charges for children in Wales.
Mar 23 2017
Hidden Savings for the public purse
A new report published today by the Rainbow Trust Children’s Charity calculates that the family support it offers saves the health and social care system at least £2 million each year.
Mar 22 2017
New NHS children’s palliative care funding guide published
UK children’s charity Together for Short Lives has welcomed the publication of NHS England’s guide on its new approach to funding the clinical elements of children’s palliative care in England. However, it has warned that there is still a long way to go until families of children with life-limiting conditions can feel confident that all the lifeline services on which they rely are recognised and have the money they need from the NHS.
Mar 17 2017
National property specialist exceeds £50,000 fundraising aim
National estate agents Leaders has presented Together for Short Lives with a cheque for more than £50,000 after reaching its fundraising target for 2016.
Mar 17 2017
New coalition of UK charities unite for disabled children
Research reveals 69% of families never receive support caring for their disabled children outside their close friends or family. The UK’s leading children’s charities will fight for better health and social care for disabled children, young people and their families under the newly-formed Disabled Children’s Partnership.
Mar 16 2017
Peers press government to improve children’s palliative care planning
A number of peers have called for the government to transform the way in which children’s palliative care is planned, funded and provided in England.
Mar 08 2017
Forgotten Children: Chancellor’s Budget fails seriously ill children
Budget 2017 has confirmed our worst fears: only the loudest voices are being heard while the most vulnerable children in our society, and their families, are being pushed to the periphery, says our CEO Barbara Gelb
Mar 07 2017
Let's turn up the volume for Children's Hospice Week!
Children's Hospice Week will be turning up the volume on children’s palliative care to raise awareness about the needs of seriously ill children and to celebrate all the lifeline services that children and families rely on.
Mar 02 2017
Report confirms postcode lottery in palliative care planning
Together for Short Lives has welcomed the publication of a crucial new research paper that shows the number and needs of people who need palliative care are poorly understood by commissioners.
Mar 01 2017
Call for robust data on seriously ill children
Together for Short Lives has welcomed an important new report commissioned by the Council for Disabled Children (CDC) and True Colours Trust, which highlights the lack of knowledge about the numbers of children with complex disabilities and/or life-limiting conditions.