See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Aug 25 2016
School nurse shortage threatens education for seriously ill children
Together for Short Lives has expressed its concern at reported cuts to school nursing which are likely to have a negative impact on the access which seriously ill children and young people have to education. The charity has called on the government, local councils, Health Education England, universities and the Council of Deans to work together to make sure that there are enough school nurses with the skills needed to care for these vulnerable children and young people in education settings.
Aug 17 2016
NICE guidance must reflect the views of children and families
Together for Short Lives has called on the National Institute for Health and Care Excellence (NICE) to listen to the concerns of families and professionals and improve new guidance on children’s palliative care. The guideline, ‘End of life care for infants, children and young people: planning and management’, aims to set out the support and care that these children – and their families – need.
Aug 16 2016
Concern over under-staffed paediatric units
Together for Short Lives is concerned by evidence published today by the Royal College of Paediatrics and Child Health (RCPCH) which shows that more than half of paediatric units are failing to meet its safe staffing standards.
Jul 21 2016
We back committee call to address health and care funding challenge
Together for Short Lives has called on the government to address the ‘colossal’ funding challenges facing health and social care in England, as outlined in a new report.
Jul 15 2016
Together for Short Lives' response to Public Accounts Committee
Together for Short Lives has called on the government and NHS England to implement the recommendations of a new Parliamentary report and improve the way it commissions specialised care for children and young people with the most complex life-shortening conditions.
Jul 10 2016
Public call to ensure children with short lives aren't short changed
Our new survey shows overwhelming public call to make sure that children with short lives are not short changed by the state.
Jul 10 2016
Seriously ill children face a postcode lottery
4 out of 5 (81%) local authorities are failing to plan and fund care for children and young people with life-shortening conditions according to the resullts of our new survey information
Jul 06 2016
Time to make palliative care choice commitment a reality
Together for Short Lives has broadly welcomed an important new government commitment which states that children and young people in England with the most complex needs should be able to live their lives as they and their parents wish.
Jul 01 2016
We welcome pivotal new guide on caring for seriously ill children
Together for Short Lives has welcomed an important new guideline which calls for compassionate care for all children and young people with life-shortening and life-limiting conditions. The guide, ‘End of life care for infants, children and young people: planning and management’, has been drafted by the National Institute for Health and Care Excellence (NICE). It aims to set out the care and support these children need and how it should be provided.
Jun 29 2016
New animation Through My Eyes
Our new animation shows the daily challenges families face caring for a child with a life-shortening condition, and the impact on family life.