See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Feb 17 2016
Nursing shortage threatens to cut care for seriously ill children
A shortage of nurses has resulted in two thirds of voluntary sector children’s palliative care services reducing their offer of care to families.
Feb 12 2016
Innovative ways of working to improve health outcomes
Examples of innovative work that has made a difference to health outcomes of children and young people with long-term conditions are being sought for a new project.
Feb 11 2016
Look out for our Purple Rolls near you
Our Purple Rolls-Royce is stopping off at children’s hospice services around the UK to raise funds and we're offering the chance to win a luxury chauffeur-driven experience.
Feb 11 2016
Parents, carers and young people needed for CQC inspections
Together for Short Lives is working with Choice Support in the central region of England to recruit parents, carers and young people with first-hand experience of children’s palliative care to join Care Quality Commission (CQC) inspections.
Jan 28 2016
Together for Short Lives welcomes bedroom tax ruling
Read our reaction to the Court of Appeal’s declaration that bedroom tax discriminates against disabled children needing overnight care.
Jan 25 2016
Government launches new framework for continuing care
The Department of Health has today published new guidance for clinical commissioning groups (CCGs) in England to help them determine whether a child or young person needs a continuing care package.
Dec 30 2015
MBE for Lucy Watts, Together for Short Lives' Ambassador
Lucy Watts has been appointed Member of the Most Excellent Order of the British Empire (MBE) in the Queen’s New Year Honours List, in recognition of her services to young people with disabilities. Since 2013 Lucy Watts has been a young Ambassador for the UK children’s palliative care charity, Together for Short Lives.
Dec 18 2015
Scottish Government launches new framework for palliative care
The Scottish Government has today published the Framework for Action on Palliative and End of Life Care. This aims to provide equitable and good quality care for everyone in Scotland and promotes increased openness about death, dying and bereavement.
Dec 16 2015
Minister offers to discuss baby mobility benefit bar
During a debate in the House of Lords last night (Monday 14 December), Lord Freud (Minister for Work and Pensions) invited Together for Short Lives to meet with him to discuss our call for seriously ill babies and young children to be given access to a key welfare benefit.
Dec 16 2015
NICE publishes new guidelines on care for dying adults
The National Institute for Health and Care Excellence (NICE) has today published new guidance ‘Care of the Dying Adult’. The new clinical guidelines were developed following criticism of the Liverpool Care Pathway and follow a consultation process in which Together for Short Lives was a registered stakeholder.