See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Jul 01 2016
We welcome pivotal new guide on caring for seriously ill children
Together for Short Lives has welcomed an important new guideline which calls for compassionate care for all children and young people with life-shortening and life-limiting conditions. The guide, ‘End of life care for infants, children and young people: planning and management’, has been drafted by the National Institute for Health and Care Excellence (NICE). It aims to set out the care and support these children need and how it should be provided.
Jun 29 2016
New animation Through My Eyes
Our new animation shows the daily challenges families face caring for a child with a life-shortening condition, and the impact on family life.
Jun 09 2016
Center Parcs support Children's Hospices
We're delighted to announce the start of a two-year national partnership with Center Parcs to raise money for children’s hospice services across the UK.
Jun 08 2016
MPs show support for children with life-shortening conditions
MPs from across the parties have today pressed the government to improve the care and support on offer to children and young people with life-shortening conditions.
Jun 03 2016
Phoenix Trading to hold Cake and Card Fundraisers
We’re delighted to announce that throughout June, Phoenix Trading, the UK's number one direct selling, greeting card publisher, will be organising Cake and Card Fundraisers in support of children’s hospices in the UK.
Jun 02 2016
Midsummer Ball raises over £290,000
Our star studded Midsummer Ball at Banqueting House raised a staggering £290,000 in support of our work with seriously ill children and their families.
May 27 2016
Jack passed away at four years old. His family were supported by their local hospice and support worker before and after his death.
May 27 2016
When Claire had to say goodbye to her little boy Jacob, her extended family were able to share in this precious time thanks to their local children’s hospice.
May 26 2016
Our work in Parliament to support Children’s Hospice Week
During Children’s Hospice Week we are working with MPs to raise awareness of the challenges facing children with life-shortening conditions across the UK.
May 26 2016
Ruby Backus was diagnosed with Sandhoff Disease – a terminal condition – when she was 16 months old. Dealing with the condition was tough on Ruby's mum Nikki, and twin brother Sam, and the family found the support they needed from Acorn's Children's Hospice. "I do not know how we would have got through without them," says Nikki.