See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
May 09 2016
End of life care for children unequal too
Together for Short Lives has expressed deep concern at the findings of the Care Quality Commission’s review into end of life care in England – and has highlighted how shortfalls in care for dying adults are reflected in end of life care for children and young people too.
May 06 2016
The Big Conversation
We’re supporting Dying Matters Awareness Week, running 9-15 May 2016.
Apr 29 2016
New SEND guide for families
Helping families of seriously ill children find their way through the maze of assessments, plans and services.
Apr 26 2016
Updated Symptom Control Manual published
New edition of the ‘to go’ symptom control resource for professionals working with seriously ill children has been published. For the first time the manual is available as a cloud based web resource, as well as a pdf download.
Apr 18 2016
New films explain how help is at hand for families
Together for Short Lives has produced a series of three films which aim to reach out to families caring for a child with a life-shortening condition so they know they are not alone.
Apr 08 2016
New options for palliative care funding in England
NHS England and Public Health England have confirmed that they are expanding their search for a fairer and more sustainable way of funding palliative care.
Mar 31 2016
End the postcode lottery in provision of palliative care
A review of end-of-life care for adults has found many hospitals are failing to provide face-to-face palliative care specialists around the clock for those that need it. Together for Short Lives is keen to work with government to end this postcode lottery in provision of end-of-life care.
Mar 24 2016
Seriously ill children must never be an afterthought for government
Disabled people are only an "afterthought" for the government, a House of Lords report has said. Together for Short Lives is calling on ministers to take action to make sure that seriously ill children and young people can play a full role right across society - accessing education, transport, leisure, housing and the workplace.
Mar 22 2016
Transforming care for seriously ill children in Scotland
Together for Short Lives, the UK charity for children with life-shortening conditions, is calling on the parties in the Scottish Parliament to commit to better palliative care for children in their upcoming election manifestos.
Mar 17 2016
Meet our new Ambassador - Rebecca Front
We are delighted to announce that the talented actor and writer Rebecca Front has become an ambassador for Together for Short Lives.