See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
May 08 2017
Dying Matters calls for a new approach to supporting end of life care
New research from Dying Matters, launched this Dying Matters Awareness Week, shows that the majority of people would be willing to offer practical help to friends and neighbours dealing with death, dying and bereavement.
May 04 2017
Take time to listen to the weakest voices in this election
UK children’s palliative care charity Together for Short Lives has called on the parties contesting the general election to listen to the voices of the 49,000 children with life-limiting and life-threatening conditions (an average of 75 in every constituency) as they finalise their pitches to voters. The call came as the charity set out the policies that it would like the Westminster parties to include in their general election manifestos.
Apr 27 2017
Children’s hospice nursing shortage hitting care for sickest children
Our survey shows that the UK’s children’s hospices have a growing shortage of nurses. This shortfall means that children’s hospices are being increasingly forced to cut back the vital palliative care they can offer to families.
Apr 19 2017
NICE draft sets the standard for children’s palliative care
Together for Short Lives has welcomed the new draft quality standard on providing palliative care to seriously ill babies, children and young people which the National Institute for Health and Clinical Excellence (NICE) has published for consultation.
Apr 03 2017
Partnering with Turn2us to fight UK poverty
Together for Short Lives partners with Turn2us on a new charitable fund to help people in need of financial assistance.
Mar 27 2017
Welsh Government to scrap burial charges for children in Wales
Together for Short Lives is delighted that the Welsh Government is to scrap burial charges for children in Wales.
Mar 23 2017
Hidden Savings for the public purse
A new report published today by the Rainbow Trust Children’s Charity calculates that the family support it offers saves the health and social care system at least £2 million each year.
Mar 22 2017
New NHS children’s palliative care funding guide published
UK children’s charity Together for Short Lives has welcomed the publication of NHS England’s guide on its new approach to funding the clinical elements of children’s palliative care in England. However, it has warned that there is still a long way to go until families of children with life-limiting conditions can feel confident that all the lifeline services on which they rely are recognised and have the money they need from the NHS.
Mar 17 2017
National property specialist exceeds £50,000 fundraising aim
National estate agents Leaders has presented Together for Short Lives with a cheque for more than £50,000 after reaching its fundraising target for 2016.
Mar 17 2017
New coalition of UK charities unite for disabled children
Research reveals 69% of families never receive support caring for their disabled children outside their close friends or family. The UK’s leading children’s charities will fight for better health and social care for disabled children, young people and their families under the newly-formed Disabled Children’s Partnership.