Engaging with young people and parents

 We want to ensure that we have strong input from both young people and parents to inform and strengthen our work and enable young people and their parents to have a voice.  We have a dedicated section on our website for young people. If you know of any young adults or parents who would like to be involved please email the team.

Who is involved in the Transition Taskforce?

The Transition Taskforce is chaired by David Strudley, Chief Executive at Acorns Children’s Hospice and led by Lizzie Chambers at Together for Short Lives. The Taskforce is informed by a strategy group which includes representatives from key partner organisations including Help the Hospices, National Council for Palliative Care, Marie Curie Cancer Care, SCOPE and the Preparing for Adulthood Programme.

How do I get involved?

If you are interested in helping us to improve the experience of young people with life-limiting and life-threatening conditions as they move into adult services, you can join the Taskforce and get involved with your Taskforce Regional Action Group.

Young people and parents can get involved by joining our Young Ambassador’s Group or our Parents Group.

For further information please email transition@togetherforshortlives.org.uk