Together for Short Lives is committed to fostering a culture in which academic research flourishes, we also want to play a leading role in ensuring that children and young people with life-shortening conditions and their families are able to take part in research and contribute their voices to increase the evidence base.
We believe that research is critical to the future development and success of children’s palliative care services. The need for evidence to demonstrate the value, impact and cost-effectiveness of children’s palliative care provision is ever stronger and it is also critical that services understand the communities that they serve and adapt to changing demographics.
To help us to achieve this vision, Together for Short Lives and the APPM (Association of Paediatric Palliative Medicine) set up a multi-disciplinary joint Research Group to help to develop a culture of research and build research capacity across the children’s palliative care sector. The group is a valuable resource for all those engaging in practice and research of children’s and young people’s palliative care. The group is chaired by Professor Myra Bluebond-Langner. For further information about the group please contact firstname.lastname@example.org
- Review of Accomplishments of Joint Research Group
- Research Group Terms of Reference - Revised June 2015
- Research Strategy 2015-18
- Submission from Together for Short Lives to Nuffield
- Submission from Together for Short Lives to RCPCH
Download the latest version of Synopsis, an international digest of children's palliative care research abstracts.