Together for Short Lives
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Freedom of Information requests to CCGs in England 2020/21

The APPG for Children Who Need Palliative Care and Together for Short Lives issued freedom of information requests to NHS clinical commissioning groups (CCGs) in England in February 2021.

These requests aimed to understand the extent to which key elements of children’s palliative care are being commissioned by CCGs.

The requests asked CCGs:

1. Do you have a children’s palliative care service specification?

2. Do you have a children’s palliative care service specification which states that infants, children and young people with a life-limiting condition and their parents or carers should have opportunities to be involved in developing an advance care plan?

3. Do you have a children’s palliative care service specification which states that infants, children and young people with a life-limiting condition should have a named medical specialist who leads and coordinates their care?

4. Do you have a children’s palliative care service specification which states that infants, children and young people with a life-limiting condition and their parents or carers should be given information about emotional and psychological support, including how to access it?

5. Do you have a children’s palliative care service specification which states that infants, children and young people with a life-limiting condition should be cared for by a multidisciplinary team that includes members of the specialist paediatric palliative care team?

6. Do you have a children’s palliative care service specification which states that parents or carers of infants, children and young people approaching the end of life should be offered support for grief and loss when their child is nearing the end of their life and after their death?

7. Do you have a children’s palliative care service specification which states that infants, children and young people approaching the end of life and being cared for at home should have 24-hour access to both children’s nursing care and advice from a consultant in paediatric palliative care?

8. Do you have a children’s palliative care service specification which states that infants, children and young people with a life-limiting condition and their families should have access regular short breaks for respite?

Click the CCG name below to view its response:

NHS Barking & Dagenham CCG
NHS Barnsley CCG
NHS Basildon and Brentwood CCG
NHS Bassetlaw CCG
NHS Bath and North East Somerset CCG
NHS Bedfordshire CCG
NHS Berkshire West CCG
NHS Birmingham and Solihull CCG
NHS Blackburn with Darwen CCG
NHS Blackpool CCG
NHS Bolton CCG
NHS Bradford Districts and Craven CCG
NHS Brent CCG
NHS Brighton & Hove CCG
NHS Bristol, North Somerset and South Glos CCG
NHS Buckinghamshire Clinical Commissioning Group
NHS Bury CCG
NHS Calderdale CCG
NHS Cambridgeshire and Peterborough CCG
NHS Cannock Chase CCG
NHS Castle Point, Rayleigh and Rochford CCG
NHS Central London (Westminster) CCG
NHS Cheshire CCG
NHS Chorley and South Ribble CCG
NHS City and Hackney CCG
NHS County Durham CCG
NHS Coventry and Rugby CCG
NHS Derby and Derbyshire CCG
NHS Devon CCG
NHS Doncaster CCG
NHS Dorset CCG
NHS Dudley CCG
NHS Ealing CCG
NHS East and North Hertfordshire CCG
NHS East Berkshire CCG
NHS East Lancashire CCG
NHS East Leicestershire and Rutland CCG
NHS East Riding of Yorkshire CCG
NHS East Staffordshire CCG
NHS East Sussex CCG
NHS Fareham and Gosport CCG
NHS Fylde & Wyre CCG
NHS Gloucestershire CCG
NHS Greater Huddersfield CCG
NHS Greater Preston CCG
NHS Halton CCG
NHS Hammersmith and Fulham CCG
NHS Harrow CCG
NHS Havering CCG
NHS Herefordshire and Worcester CCG
NHS Herts Valleys CCG
NHS Heywood, Middleton & Rochdale CCG
NHS Hillingdon CCG
NHS Hounslow CCG
NHS Hull CCG
NHS Ipswich and East Suffolk CCG
NHS Isle of Wight CCG
NHS Kent and Medway CCG
NHS Kernow CCG
NHS Knowsley CCG
NHS Leeds CCG
NHS Leicester City CCG
NHS Lincolnshire CCG
NHS Liverpool CCG
NHS Luton CCG
NHS Manchester CCG
NHS Mid Essex CCG
NHS Milton Keynes CCG
NHS Morecambe Bay CCG
NHS Newcastle Gateshead CCG
NHS Newham CCG
NHS Norfolk and Waveney CCG
NHS North Central London CCG
NHS North Cumbria CCG
NHS North East Essex CCG
NHS North East Hampshire and Farnham CCG
NHS North East Lincolnshire CCG
NHS North Hampshire CCG
NHS North Kirklees CCG
NHS North Lincolnshire CCG
NHS North Staffordshire CCG
NHS North Tyneside CCG
NHS North Yorkshire CCG
NHS Northamptionshire CCG
NHS Northumberland CCG
NHS Nottingham and Nottinghamshire CCG
NHS Oldham CCG
NHS Oxfordshire CCG
NHS Portsmouth CCG
NHS Redbridge CCG
NHS Rotherham CCG
NHS Salford CCG
NHS Sandwell and West Birmingham CCG
NHS Sheffield CCG
NHS Shropshire CCG
NHS Somerset CCG
NHS South East London CCG
NHS South East Staffs and Seisdon Peninsular CCG
NHS South Eastern Hampshire CCG
NHS South Sefton CCG
NHS South Tyneside CCG
NHS South Warwickshire CCG
NHS South west london CCG
NHS Southampton CCG
NHS Southend CCG
NHS Southport and Formby CCG
NHS St Helens CCG
NHS Stafford and Surrounds CCG
NHS Stockport CCG
NHS Stoke on Trent CCG
NHS Sunderland CCG
NHS Surrey Heartlands CCG
NHS Surrey Heath CCG
NHS Tameside and Glossop CCG
NHS Tees Valley CCG
NHS Telford & Wrekin CCG
NHS Thurrock CCG
NHS Tower Hamlets CCG
NHS Trafford CCG
NHS Vale of York CCG
NHS Wakefield CCG
NHS Walsall CCG
NHS Waltham Forest CCG
NHS Warrington CCG
NHS Warwickshire North CCG
NHS West Essex CCG
NHS West Hampshire CCG
NHS West Lancashire CCG
NHS West Leicestershire CCG
NHS West London (K&C & QPP) CCG
NHS West Suffolk CCG
NHS West Sussex CCG
NHS Wigan Borough CCG
NHS Wirral CCG
NHS Wolverhampton CCG

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