Together for Short Lives
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Making sure that services are regulated fairly and proportionately

Organisations and professionals that provide children’s palliative care within the UK are regulated. This ensures that children receive safe, high quality care from professionals with the right skills and expertise to care for them. Together for Short Lives works with regulators across the UK to make sure that the way in which services are regulated is fair and proportionate.

All organisations that provide care in England – whether from the statutory, voluntary or private sector – are regulated by the Care Quality Commission (CQC). The CQC publishes a report about each organisation online, detailing how safe, effective, caring, responsive and well-led each service is. This report is based on inspections that the specially trained CQC inspectors carry out of each service. The CQC also publishes a rating for each of these criteria, ranging from ‘Inadequate’ to ‘Outstanding’.

What would Together for Short Lives like to happen?

  1. We want to make sure that individuals responsible for inspecting children’s palliative care services understand what children’s palliative care is, who provides it and what the important differences are between the settings in which it is delivered. In particular, we are keen to make sure that inspectors understand that children’s palliative care is a holistic approach which includes medical and non-medical elements.
  2. We want the CQC’s new approach to regulation to make sure that a consistent system is developed for inspecting children’s palliative care services, regardless of the setting in which it is provided.
  3. We want the CQC to make sure that it can assess the way in which networks of providers offer joined-up care to children and young people with life-limiting conditions.

We set out our thinking on the role of the CQC and its approach to regulation in our response to its ‘Our next phase of regulation’ consultation on the issue in 2017. You can download our response using the link on the right.

You can read CQC’s ‘Sector-specific guidance: Hospices for children and young people’ here.

Policy and influencing