Together for Short Lives
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Making sure that fundraising is regulated fairly and proportionately

Fundraising regulation is important for children’s palliative care charities. All fundraising by, or on behalf of, charitable organisations in England, Northern Ireland and Wales is regulated by the Fundraising Regulator. Charities in Scotland are regulated by the Scottish Fundraising Standards Panel, which works closely with the Fundraising Regulator to propose and consider amendments to the Code of Fundraising Practice. Together for Short Lives is working with regulators to make sure that the way in which children’s palliative care charities raise money is regulated fairly and proportionately.

The Fundraising Regulator:

  • Sets and promotes standards for fundraising practice.
  • Investigates cases where charities’ practices have led to concern.
  • Adjudicates complaints from the public about fundraising.
  • Operates the Fundraising Preference Service, which enables individuals to manage their contact with charities.
  • Recommends best practice.

Many organisations that provide children’s palliative care – including all children’s hospices – are charities that fundraise and are therefore regulated by the Fundraising Regulator.

Since the introduction of the new Fundraising Regulator in 2016, charities spending over £100,000 on fundraising are required to pay a new levy. This levy varies depending on the amount spent on fundraising by the charity, ranging from £150 to £15,000 per year.

What would Together for Short Lives like to happen?

We would like the levy bands to be revised, as the current banding system means that smaller organisations pay a disproportionately high levy. For example, a charity spending £150,000 on fundraising will pay a £300 levy, or 0.2% of their fundraising expenditure, while a charity spending £10m on fundraising will pay an £8,000 levy, or 0.08% of their fundraising expenditure.

Policy and influencing