Together for Short Lives
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Research

We are committed to fostering a culture in which academic research flourishes. New abstracts and the Synopsis publication are added online twice a year. We also lead a joint Research Group with the APPM.

Search our online database by title, author(s), publication year or key word(s).

Towards culturally competent paediatric oncology care. A qualitative study from the perspective of care providers

Journal title
European journal of cancer care
Publication year
2017
Author(s)
Suurmond, J.; Lieveld, A.; van de Wetering, M.; Schouten-van Meeteren, A. Y.
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Towards evidence-based dosing regimens in children on the basis of population pharmacokinetic pharmacodynamic modelling

Journal title
Archives of disease in childhood
Publication year
2014
Author(s)
Admiraal, R.; van Kesteren, C.; Boelens, J. J.; Bredius, R. G.; Tibboel, D.; Knibbe, C. A.
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Towards improved ways of knowing children with profound multiple disabilities: introducing startle reflex modulation

Journal title
Developmental neurorehabilitation
Publication year
2013
Author(s)
Lyons, G. S.; Walla, P.; Arthur-Kelly, M.
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Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study

Journal title
Palliative medicine
Publication year
2020
Author(s)
Namisango, E.; Bristowe, K.; Murtagh, F. E.; Downing, J.; Powell, R. A.; Abas, M.; Lohfeld, L.; Ali, Z.; Atieno, M.; Haufiku, D.; Guma, S.; Luyirika, E. B.; Mwangi-Powell, F. N.; Higginson, I. J.; Harding, R.
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Towards universal coverage-highlights from the 2nd Uganda Conference on Cancer and Palliative Care, 5-6 September 2019, Kampala, Uganda

Journal title
Ecancermedicalscience
Publication year
2019
Author(s)
Downing, J.; Niyonzima, N.; Guma, S.; Batuli, M.; Kiwanuka, R.; Atuhe, I.; Nalukwago, Z.; Mwesiga, M.; Phipps, W.; Ddungu, H.
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Tracheostomies and assisted ventilation in children with profound disabilities: navigating family and professional values

Journal title
Pediatrics
Publication year
2014
Author(s)
Wilfond, B. S.
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Tracheostomy as a Comfort Measure in Children With Life-Limiting Conditions

Journal title
Journal of palliative care
Publication year
2017
Author(s)
Marshall, V.; Holt, F.; Crowe, S.
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Tracheostomy in mucopolysaccharidosis type II (Hunter’s Syndrome)

Journal title
International journal of pediatric otorhinolaryngology
Publication year
2013
Author(s)
Malik, V.; Nichani, J.; Rothera, M. P.; Wraith, J. E.; Jones, S. A.; Walker, R.; Bruce, I. A.
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