By acting together, Together for Short Lives has a stronger collective voice for seriously ill children, families, and all those working across children’s palliative care.
Together for Short Lives is committed to working in partnership and collaborating with others to make a lasting difference to seriously ill children and families, and to support all those who work in children’s and young people’s palliative care. Together we have a stronger voice and are more able to raise awareness of the needs of children and families and secure policy change.
Together for Short Lives delivers UK wide campaigns in partnership with its 1,000 strong membership, and engages with national initiatives including with the Disabled Children’s Partnership, Dying Matters, Hospice Care Week, Baby Loss Awareness Week and international campaigns led by the International Children’s Palliative Care Network.
The Association for Paediatric Palliative Medicine
The Association for Paediatric Palliative Medicine represents doctors working in paediatric palliative care across all care settings in the UK. This includes both paediatricians with an interest in paediatric palliative medicine and other doctors, particularly GPs with a specialist interest, many of whom are working in children’s hospices.
For more information visit The Association for Paediatric Palliative Medicine website
Baby Loss Awareness Week Coalition
Together for Short Lives is a member of the Baby Loss Awareness Week coalition of 40 charities. The charities leading Baby Loss Awareness Week provide support to anyone affected by pregnancy loss and the death of a baby, and work with health professionals and services to improve care, and raise awareness of pregnancy and baby loss. The coalition also want to identify how we can reduce preventable deaths and improve support for all those affected.
For more information visit the Baby Loss Awareness Week website
Children England is a charity created, governed and inspired by other charities. Its mission is to change the world for England’s children by harnessing the energy, ingenuity and expertise of the voluntary organisations that work on their behalf.
For more information visit the Children England website
Contact is the UK charity for families with disabled children. Contact supports families with the best possible guidance and information. They bring families together to support each other, and help families to campaign, volunteer and fundraise to improve life for themselves and others.
For more information visit Contact’s website
Council for Disabled Children
The Council for Disabled Children (CDC) is an umbrella charity for the disabled children’s sector, bringing together professionals, practitioners and policy-makers. CDC wants disabled children and young people and those with special educational needs to have full and happy childhoods, to fulfil their potential, and be active within the community.
For more information visit The Council for Disabled Children’s website
Disabled Children’s Partnership
The Disabled Children’s Partnership is a coalition of over 50 organisations campaigning for improved health and social care for disabled children, young people and their families. Together for Short Lives is a member of the partnership, working with partners to address the lack of health and social care services; improve the quality of services available; make sure families can access those services; and ensure professionals communicate with each other and work together.
For more information visit the Disabled Children’s Partnership website
European Association for Palliative Care
The European Association for Palliative Care (EAPC) is a palliative care organisation in Europe and provides a forum for all of those either working, or with an interest in palliative care throughout Europe and beyond. The EAPC has 55 member associations from 31 European countries and aims to speak with ‘one voice and one vision’ on matters that are important for the practice and development of palliative care.
For more information visit The European Association for Palliative website
Hospice UK and Dying Matters
Hospice UK is the national charity for hospice care, working closely with members to support their work and to advocate and raise awareness of hospice care. Hospice UK runs the awareness campaign Dying Matters. The Dying Matters has 32,000 members across England and Wales and aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.
For more information visit the Hospice UK website
For more information visit the Dying Matters website
International Children’s Palliative Care Network
The International Children’s Palliative Care Network (ICPCN) is a worldwide network of individuals and agencies working with children and young people with life-limiting conditions. ICPCN shares a vision that the total needs of life-limited children and their families should be met, to encompass physical, emotional, social, spiritual and developmental aspects of care. Together for Short Lives is a member of ICPCN.
For more information visit the International Children’s Palliative Care Network website
Fair Funerals Campaign
The Fair Funerals campaign is run by anti-poverty charity Quaker Social Action to tackle the root causes of funeral poverty. Since 1867 Quaker Social Action has run practical projects supporting people in poverty. They run the Down to Earth project which directly supports people in low incomes struggling with the cost of a funeral. Together for Short Lives supports the Fair Funerals Campaign, working with others to tackles the underlying causes of funeral poverty.
For more information visit the Fair Funerals Campaign website
The Health and Wellbeing Alliance
The Voluntary Community and Social Enterprise (VCSE) Health and Wellbeing Alliance (HW Alliance) is a key element of the Health and Wellbeing Programme, and the Health and Wellbeing Alliance is a partnership between voluntary sectors and the health and care system to provide a voice and improve the health and wellbeing for all communities. Together for Short Lives is a member of the HW Alliance, committed to foster integrated working across the voluntary and statutory sectors and amplifying the voice of the VCSE sector and people with lived experience to inform national policy.
For more information visit the NHS England website
Marie Curie Cancer Care is there for people living with any terminal illness, and their families. They offer expert care, guidance and support to help them get the most from the time they have left, and have a network of nurses who work in the homes of terminally ill patients. The charity supports people throughout their illness by giving practical information, support from trained volunteers and being there when someone wants to talk.
For more information visit the Marie Curie website
National Association for Hospice at Home
The National Association for Hospice at Home (NAHH) is a national umbrella and representative body for Hospice at Home organisations in the UK. NAHH supports its members and other organisations to develop and improve the palliative and end of life care they provide in patients own homes. The aim is for the very best care for everyone facing the end of life, no matter where they live, who they are or what their condition is.
For more information visit the National Association for Hospice at Home website
Find out how you can become a member of Together for Short Lives and be part of our collective voice for children and families