A checklist to a good transition
'A checklist to a good transition' joins our suite of resources aimed at improving the...
Family Resources
Our family resources are created to support anyone who is caring for, or has cared for, a child with a life-limiting or life-threatening condition. They are free to download from our website, but many are also available in hard copy should you need them.
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Transition to adult services: A guide for parents
Caring for a child with a life-limiting or life-threatening condition who is entering their teens or early adulthood can be a very worrying time as their child moves from familiar children’s services to new adult...
A family guide to the SEND system in England
Our interactive guide aims to help families of children and young people in England with...
A parent’s guide: making critical care choices for your child
This leaflet has been developed for parents, carers or legal guardians who care for a...
Aids and Equipment
If your child would benefit from specialist equipment or other aids, these should be identified...
Care Planning in Advance
An Advance Care Plan (ACP) is a document that sets out an agreed plan of...
Care Transfer Document
This document is a patient-held record and provides a place to record a brief summary...
Caring for your child at end of life – family guide
We know that every family’s experience of losing a child is unique and always devastating....