A checklist to a good transition
'A checklist to a good transition' joins our suite of resources aimed at improving the...
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Family Resources
Our family resources are created to support anyone who is caring for, or has cared for, a child with a life-limiting or life-threatening condition. They are free to download from our website, but many are also available in hard copy should you need them.
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My Care Transfer
My Care Transfer is a bespoke digital platform designed to help families looking after seriously ill children to communicate effectively with care professionals. We often hear from families that admission to hospital can be made...
A Family Companion
This Family Companion is designed especially for parents/carers and family members of children and young...
A family guide to the SEND system in England
Our interactive guide aims to help families of children and young people in England with...
A parent’s guide: making critical care choices for your child
This leaflet has been developed for parents, carers or legal guardians who care for a...
Assistive Technology
This factsheet is designed to signpost you to organisations and resources that provide information about...
Benefits
There are a number of benefits and tax credits that you may be entitled to. Some benefits can...
Care Planning in Advance
Throughout your child’s care, you will have been developing plans for their care based on...
