Caring for your baby when the future is uncertain

We hope that this information will support you in caring for your baby when the future is uncertain.

For information and support about children’s palliative care, you can contact our Family Support Hub:

Helpline: 0808 8088 100

This information has been written together by Together for Short Lives and Bliss.

It can be difficult to take in and make sense of the information you are being given and the decisions you might have to make.

Whilst on the unit, you should be supported to become an expert in caring for your baby.

Your team may have talked to you about palliative care for your baby.

It is not always easy to predict the time when your baby is likely to move into the final phase of their life

Organisations that can provide information, help and support