How we're funded
We're a charity that relies on your support
Call the Helpline
0808 8088 100
About us
We want to help every child and family living with a life-limiting or life-threatening condition get the very best care and support they can so they can make the most of every moment together
Making an impact
By supporting and speaking up for children and families, and those that support and care for them, we are driving for a better quality of life and end of life for children with life-limiting and life-threatening conditions. We want to help change lives.
Find out more about what we do and our strategy for change.
Alfie's story: Lighting up the room
When Alfie was diagnosed with Duchenne Muscular Dystrophy his parents were told over the phone – we’ve been supporting the family so they don’t have to suffer alone.
- Over the past year we have spent 15,913 minutes supporting families on our helpline.
- Over 50,000 people visited our online family support hub.
We hugged him, we held his hand, we had as much time as we needed to say goodbye to him – never enough. We used the Butterfly Fund grant to buy him a suit for his funeral. I hope he liked it.
I enjoyed playing a small part in bringing families together online while hosting the Virtual Cuppas, sharing my experiences and talking to others. It was a great comfort.
Get to know us
We are a UK charity that works both directly and with our members to support children and young people who are expected to have short lives
