You can search for support services that can help you and your family, such as your local children’s hospice in your area. Show all services on a map or show all services in a list.
Call the Helpline
0808 8088 100
Get Support
We help to support families caring for children with life-limiting or life-threatening conditions every step of the way
Your child's care
Each family is unique and everyone's journey will be different. This section gives you information and advice to help you every step of the way following your child's diagnosis.
Call our Helpline on 0808 8088 100
Are you a parent or carer who looks after or knows a child or young person who has a life-limiting or life-threatening condition? If you have questions, need support or just want someone to talk to, please contact our Together for Families Helpline free on 0808 8088 100.
You can also email us at info@togetherforshortlives.org.uk with your helpline questions and someone will respond as soon as possible. Our Helpline is also there to support professionals who care for children, young people and families.
Supporting you
We help you understand what is going to happen following your child's diagnosis, and what support is available locally.
Resources and factsheets
-
A Family Companion
This Family Companion is designed especially for parents/carers and family members of children and young people who have been diagnosed with a life-limiting or life-threatening...
-
Children’s Hospice Services
Children’s hospice services help children and young people with life-limiting conditions who are not expected to reach adulthood, and their families, to deal with the...
Find a local support service
Family Stories
-
Lisa’s Story: Julia’s House saved my marriage
Lisa Johnston and her husband, Jason, live in Dorset with their five children. Their youngest child, Kitty, eight, has Kabuki Syndrome, a rare genetic disorder that affects...
-
Orla’s story: a lovely, cheeky little girl
In her first years of life, Orla had cardiac arrests at home with her terrified parents forced to give CPR on their living-room floor. Now...
-
Caleb’s story: support for the whole family
We shared this story as part of National Siblings Day 2018 to highlight the special bond between siblings Caleb and Scarlett, and the support children's...
Your questions answered
Check our list of questions received through the Together for Families helpline in the past
Your voice
The voices of children, young people and families are at the heart of everything we do. We would love you to share your voice too - together we are a much stronger and powerful movement
Find out how you can get involved with our work
We want young people and families to have their say - why not get involved with our campaigns?