You can search for support services that can help you and your family, such as your local children’s hospice in your area. Show all services on a map or show all services in a list.
Call the Helpline
0808 8088 100
Family Support Hub
Our Family Support Hub offers emotional support and practical advice, connecting you with other families, and helping you access free legal advice if you need it.
Your child's care
Each family is unique and everyone's experience will be different. These pages give you information and advice that can be helpful at different times following your child's diagnosis. If you're worried about Covid-19 please see our Q&A.
Call our Helpline on 0808 8088 100
Are you a parent or carer who looks after a child or young person who has a life-limiting or life-threatening condition? If you have questions, need support or just want someone to talk to, please contact our Together for Families Helpline free on 0808 8088 100.
You can also email us at info@togetherforshortlives.org.uk with your helpline questions and someone will respond as soon as possible. Our Helpline is also there to support professionals who care for children, young people and families.
Supporting you
Find easily digestible information about the support you need, find local or national support services, and connect with other families who understand what you are going through.
Resources and factsheets
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Coronavirus Q&A
Updated 25 November 2020 The Coronavirus pandemic has been an incredibly worrying time for families caring for a seriously ill child. We have pulled together...
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A Family Companion
The Together for Short Lives Family Companion is for parents/carers and family members of children and young people who have been diagnosed with a life-limiting...
Find a local support service
Family Stories
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Baby Violet: A bright shining light
During the routine 20 week anomaly scan, a problem was identified with little Violet’s heart. The following day the family attended St Michael’s Hospital in...
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Dan and Elisa’s story: a short breaks lifeline
Elisa’s dad Dan gave up his career to become her full-time carer after she was born with cerebral palsy. Here he talks about the impact...
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Noah’s Story: Finding that missing jigsaw piece
Noah’s epilepsy got so bad during the Coronavirus lockdown that he nearly died. His mum Emma was thankful to have the support of Julia’s House...
Your questions answered
Check our list of questions received through the Together for Families helpline in the past
Your voice
The voices of children, young people and families are at the heart of everything we do. We would love you to share your voice too - together we are a much stronger and powerful movement
Find out how you can get involved with our work
We want young people and families to have their say - why not get involved with our campaigns?