Together for Short Lives
Call the Helpline 0808 8088 100

Family Support Hub

Our Family Support Hub offers emotional support and practical advice, connecting you with other families, and helping you access free legal advice if you need it.


Your child's care

Each family is unique and everyone's journey will be different. This section gives you information and advice to help you every step of the way following your child's diagnosis.

Call our Helpline on 0808 8088 100

Are you a parent or carer who looks after or knows a child or young person who has a life-limiting or life-threatening condition? If you have questions, need support or just want someone to talk to, please contact our Together for Families Helpline free on 0808 8088 100.

You can also email us at with your helpline questions and someone will respond as soon as possible. Our Helpline is also there to support professionals who care for children, young people and families.

Supporting you

We help you understand what is going to happen following your child's diagnosis, and what support is available locally.

Resources and factsheets

  • A Family Companion

    This Family Companion is designed especially for parents/carers and family members of children and young people who have been diagnosed with a life-limiting or life-threatening...

  • transition to adults and rag groups

    Children’s Hospice Services

    Children’s hospice services help children and young people with life-limiting conditions who are not expected to reach adulthood, and their families, to deal with the...

Family Stories

  • Lisa’s Story: Julia’s House saved my marriage 

    Lisa Johnston and her husband, Jason, live in Dorset with their five children. Their youngest child, Kitty, eight, has Kabuki Syndrome, a rare genetic disorder that affects...

  • Orla’s story: a lovely, cheeky little girl

    In her first years of life, Orla had cardiac arrests at home with her terrified parents forced to give CPR on their living-room floor. Now...

  • Caleb’s story: support for the whole family

    We shared this story as part of National Siblings Day 2018 to highlight the special bond between siblings Caleb and Scarlett, and the support children's...

Your questions answered

Check our list of questions received through the Together for Families helpline in the past

Find out how you can get involved with our work

We want young people and families to have their say - why not get involved with our campaigns?