Together for Short Lives
Call the Helpline 0808 8088 100

Family Support Hub

Our Family Support Hub offers emotional support and practical advice, connecting you with other families, and helping you access free legal advice if you need it.


Your child's care

Each family is unique and everyone's experience will be different. These pages give you information and advice that can be helpful at different times following your child's diagnosis. If you're worried about Covid-19 please see our Q&A.

Call our Helpline on 0808 8088 100

Are you a parent or carer who looks after a child or young person who has a life-limiting or life-threatening condition? If you have questions, need support or just want someone to talk to, please contact our Together for Families Helpline free on 0808 8088 100.

You can also email us at with your helpline questions and someone will respond as soon as possible. Our Helpline is also there to support professionals who care for children, young people and families.

Supporting you

Find easily digestible information about the support you need, find local or national support services, and connect with other families who understand what you are going through.

Resources and factsheets

  • Acorns expires April 2022 Mum and son in the garden

    Coronavirus Q&A

    Updated 25 November 2020 The Coronavirus pandemic has been an incredibly worrying time for families caring for a seriously ill child. We have pulled together...

  • A Family Companion

    The Together for Short Lives Family Companion is for parents/carers and family members of children and young people who have been diagnosed with a life-limiting...

Family Stories

  • Baby Violet: A bright shining light

    During the routine 20 week anomaly scan, a problem was identified with little Violet’s heart. The following day the family attended St Michael’s Hospital in...

  • Dan and Elisa’s story: a short breaks lifeline

    Elisa’s dad Dan gave up his career to become her full-time carer after she was born with cerebral palsy. Here he talks about the impact...

  • Noah’s Story: Finding that missing jigsaw piece

    Noah’s epilepsy got so bad during the Coronavirus lockdown that he nearly died. His mum Emma was thankful to have the support of Julia’s House...

Your questions answered

Check our list of questions received through the Together for Families helpline in the past

Find out how you can get involved with our work

We want young people and families to have their say - why not get involved with our campaigns?