Together for Short Lives
Call the Helpline 0808 8088 100

Family Support Hub

Here to support families caring for a life-limited or life-threatened child find the support they need

Your child's care

Each family is unique and everyone's experience will be different. These pages give you information and advice that can be helpful at different times following your child's diagnosis.

Call our Helpline on 0808 8088 100 or Live chat with us

Are you a parent or carer who looks after a child or young person who has a life-limiting or life-threatening condition? If you have questions, need support or just want someone to talk to, please contact our Together for Families Helpline free on 0808 8088 100.  Alternatively click on the Live chat button in the bottom right of the screen.

You can also email us at with your helpline questions and someone will respond as soon as possible. Our Helpline is also there to support professionals who care for children, young people and families.

Supporting you

Find easily digestible information about the support you need, find local or national support services, and connect with other families who understand what you are going through.

Resources and factsheets

  • Withdrawing life sustaining treatment painted pebbles

    Caring for your child at end of life – family guide

    We know that every family’s experience of losing a child is unique and always devastating. Some will care for a child with a life-limiting illness...

  • A Family Companion

    The Together for Short Lives Family Companion is for parents/carers and family members of children and young people who have been diagnosed with a life-limiting...

Family Stories

  • Tilly’s story: “Together for Short Lives made me feel brave again”

    This is Dee’s story Dee is mum to Tilly, who has Rett syndrome. “When Tilly was one, it was like a light went out. From...

  • Osian

    Osian’s Story: “Sometimes I think he was looking directly into your soul”

    “Osian was full of joy and magic, and that is how we will always remember him,” says Osian’s mum George, remembering the boy who was...

  • Abbie

    Abbie’s story: “It’s so nice knowing she’s safe and happy. It means I can relax.”

    For mum Lisa, East Anglia’s Children’s Hospices (EACH) has been an “absolute saviour” for her whole family. When her daughter Abbie was born, mum Lisa...

Your questions answered

Check our list of questions received through the Together for Families helpline in the past

Find out how you can get involved with our work

We want young people and families to have their say - why not get involved with our campaigns?