Together for Short Lives
Call the Helpline 0808 8088 100

Family Support Hub

Here to support families caring for a life-limited or life-threatened child find the support they need

Your child's care

Each family is unique and everyone's experience will be different. These pages give you information and advice that can be helpful at different times following your child's diagnosis.

Call our Helpline on 0808 8088 100 or Live chat with us

Are you a parent or carer who looks after a child or young person who has a life-limiting or life-threatening condition? If you have questions, need support or just want someone to talk to, please contact our Together for Families Helpline free on 0808 8088 100.  Alternatively click on the Live chat button in the bottom right of the screen.

You can also email us at helpline@togetherforshortlives.org.uk with your helpline questions and someone will respond as soon as possible. Our Helpline is also there to support professionals who care for children, young people and families.

Supporting you

Find easily digestible information about the support you need, find local or national support services, and connect with other families who understand what you are going through.

Resources and factsheets

  • Acorns expires April 2022 Mum and son in the garden

    Coronavirus Q&A

    Updated 11 June 2021 The Coronavirus pandemic has been an incredibly worrying time for families caring for a seriously ill child. Over the past year...

  • A Family Companion

    The Together for Short Lives Family Companion is for parents/carers and family members of children and young people who have been diagnosed with a life-limiting...

Family Stories

  • Emily’s story: “Every little moment”

    When Emily was born with a severe heart condition, the doctors told family to take her home and make the most of what precious time...

  • Emily’s Story: “Whilst praying for a future, we also had to prepare for the worst”

    Everyone who met Emily was instantly captivated by her bright smile and inquisitive eyes. At 17 months old, Emily was diagnosed with Rett Syndrome, a...

  • I was surrounded with mums and their new babies. But I was alone.

    “We knew something was wrong when the trainee sonographer asked for her superior to have a look.” At 20 weeks, Emily and Paul were told...

Your questions answered

Check our list of questions received through the Together for Families helpline in the past

Find out how you can get involved with our work

We want young people and families to have their say - why not get involved with our campaigns?