You can search for support services that can help you and your family, such as your local children’s hospice in your area. Show all services on a map or show all services in a list.
Call the Helpline
0808 8088 100
Family Support Hub
Our Family Support Hub offers emotional support and practical advice, connecting you with other families, and helping you access free legal advice if you need it.
Your child's care
Each family is unique and everyone's experience will be different. These pages give you information and advice that can be helpful at different times following your child's diagnosis. If you're worried about Covid-19 please see our Q&A.
Call our Helpline on 0808 8088 100
Are you a parent or carer who looks after a child or young person who has a life-limiting or life-threatening condition? If you have questions, need support or just want someone to talk to, please contact our Together for Families Helpline free on 0808 8088 100.
You can also email us at info@togetherforshortlives.org.uk with your helpline questions and someone will respond as soon as possible. Our Helpline is also there to support professionals who care for children, young people and families.
Supporting you
Find easily digestible information about the support you need, find local or national support services, and connect with other families who understand what you are going through.
Resources and factsheets
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Coronavirus Q&A
Updated 22 April 2020 The outbreak is a developing situation and we would recommend that you seek information directly from Government websites as the situation...
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A Family Companion
The Together for Short Lives Family Companion is for parents/carers and family members of children and young people who have been diagnosed with a life-limiting...
Find a local support service
Family Stories
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Lisa’s Story: Julia’s House saved my marriage
Lisa Johnston and her husband, Jason, live in Dorset with their five children. Their youngest child, Kitty, eight, has Kabuki Syndrome, a rare genetic disorder that affects...
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Orla’s story: a lovely, cheeky little girl
In her first years of life, Orla had cardiac arrests at home with her terrified parents forced to give CPR on their living-room floor. Now...
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Caleb’s story: support for the whole family
We shared this story as part of National Siblings Day 2018 to highlight the special bond between siblings Caleb and Scarlett, and the support children's...
Your questions answered
Check our list of questions received through the Together for Families helpline in the past
Your voice
The voices of children, young people and families are at the heart of everything we do. We would love you to share your voice too - together we are a much stronger and powerful movement
Find out how you can get involved with our work
We want young people and families to have their say - why not get involved with our campaigns?