Practical and financial support
Caring for a seriously ill child with complex medical needs and disabilities can be both financially and practically challenging. Find out below how we can support you directly with financial and practical assistance, and also find information about other places you can get help with day to day challenges.
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Financial support and grants
If you are facing financial pressure as a result of caring for a seriously ill child we may be able to help you get some direct financial assistance from charities or grant schemes.
Help with energy bills
If you are caring for a seriously ill child with complex medical needs at home you may have high energy bills. Our Energy Adviser can offer advice and support to help you lower your bills.
Support with shopping and household essentials
If you care for a child with a life-limiting or life-threatening condition we may be able to help you get emergency support with food shopping or household essentials.
Benefits
There are a number of benefits and tax credits that you may be entitled to if you are caring for a seriously ill child. Find out more about what you are entitled to.
Help with your transport needs
If your child has complex disabilities or relies on specialist medical equipment find out how you can get support with you and your child's transport needs.
Going on a short break or holiday
Find out about charities that can hep organise holidays for your seriously ill child, either with you or your family or on their own with a group of other children/young people.
Grant giving and wish making
Find out about charities that help children experience dream days and give families an opportunity to build important memories of happy times together, and find out how we can refer you directly to Make A Wish UK and the Willow Foundation.
The Butterfly Fund
The Butterfly Fund is a helping hand, providing a one-off payment of £300 to families following the death of a child with a life-limiting condition.