Useful resources
Together for Short Lives (UK)
For information and support about children’s palliative care, including links to parent peer support groups, you can contact our Family Support Hub.
- Helpline: 0808 8088 100
- Email: helpline@ togetherforshortlives.org.uk
- www.togetherforshortlives.org.uk/getsupport
Bliss (UK)
For information and support about looking after your baby on a neonatal unit and at home and links to parent peer support groups, you can contact the Bliss support team.
ARC: Antenatal Results and Choices (UK)
Antenatal Results & Choices offers impartial information and support to help decide on your next steps in making antenatal decisions.
Child Bereavement UK
Child Bereavement UK provide support and guidance for all members of the family affected by the death of a loved one and includes some short guidance films.
The Children’s Funeral Fund for England
The Children’s Funeral Fund for England can help to pay for some of the costs of a funeral for a child under 18 or a baby stillborn after the 24th week of pregnancy.
Contact (UK)
Providing information and details of condition support groups for families with disabled children. Contact offers support to families, brings families together and helps families take action for others.
Held In Our Hearts (Scotland)
A Scottish-based charity providing baby loss counselling and peer support to families.
Royal College of Paediatrics & Child Health (UK)
For supportive information for families about seeking an external second opinion.
Sands (UK)
Sands offers support to anyone who has been affected by the death of a baby before, during or shortly after birth, whenever this happened and for as long as they need support.
Simba (Scotland)
SIMBA help those grieving create precious moments to honour their babies memory.
Sunbeam (Wales)
Sunbeam is a partnership of health care professionals from across specialist antenatal, neonatal and palliative care services offering support to families in Wales where there is uncertainty about their baby’s future. Your local team will be able to support you being referred to this specialist team.
Tommy’s – The Pregnancy Charity (UK)
Tommy’s is dedicated to finding causes and treatments to save babies’ lives as well as providing trusted pregnancy and baby loss information and support.
Twins Trust (UK)
Aiming to facilitate a network of community support, Twins Trust provides parents of twins, triplets or more, information and guidance as well as helping to ensure these families’ unique needs are understood by the professionals who care for them.
Winston’s Wish (UK)
Winston’s Wish provides emotional and practical bereavement support to children, young people (up to 25) and those who care for them. They also have publications available to order offering support for children when someone close to them is seriously ill.