Caring for your baby when the future is uncertain

An information booklet for parents about perinatal palliative care.

This booklet is a resource for parents who have had conversations with their care team, either during pregnancy or after birth, that their baby’s future is uncertain.

It aims to provide you with information and sources of support when there is uncertainty about your baby’s future and they may need palliative care.

We hope that it will help guide you through this time and help you think about the best care for your baby and the support you need as a family.

This resource has been written together by Together for Short Lives and Bliss.

We hope that it will…

1. Support you in caring for your baby

2. Provide you with information on planning for your baby’s care

3. Help you to understand what palliative care is

4. Help you to understand what hospice care is

5. Signpost you to sources of information and support