If you are a parent, Carer or family member of a child with a life limiting condition we need your help. Join our mailing list and become a Family Expert and we will email you opportunities to shape our projects, take part in research, and a chance to get your voice heard by taking part in consultations.
We call those who generously give their time to help us and the palliative care sector ‘Family Experts’, this title truly reflecting the knowledge and lived experience that we appreciate so much.
There’s no minimum time commitment and no obligation to take part in every task; making this opportunity easy to fit in with the demands of everyday life. Our family community is for any family member involved in a child’s care. Young adults with life-limiting or life-threatening conditions can join too.
Sign up below to become a Family Experts, or continue reading for more about our family community.
Become a Family Expert
If you are a parent, carer, or family member of a child with a life limiting condition and would like to be a part of our Family Experts group, or would like to receive more information about the group, please fill in the form below. The information you provide will help us to tailor our emails to you so you only receive relevant information.
If you feel like this is not for you but would still like to be a part of our family community, you can stay in touch with developments by receiving our newsletter, getting involved in our work through the family groups outlined below, or joining our Families Together support group on Facebook:
If you want to get more involved in our work in any way please email firstname.lastname@example.org to register your interest, and maybe tell us a bit about your own experience, and we will be in touch soon.
The voices of children, young people and families are at the heart of everything we do. Your personal experience is the most powerful tool to help us raise awareness and make change happen. By listening to parents, and amplifying your voices we are a much stronger movement. So if you are caring for, or have cared for a child with a life-limiting or life-threatening condition we would love to hear from you.