Caleb’s story: support for the whole family
We shared this story as part of National Siblings Day 2018 to highlight the special...
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Family stories
49,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.
Jack’s Story: the beginning of everything
Single mum Hayley was worried and struggling to cope alone when her son Jack started having life-threatening seizures. In her story, she talks about the impact it had on her daughter, Evie. I had to give up my career as...
Lisa’s Story: Julia’s House saved my marriage
Lisa Johnston and her husband, Jason, live in Dorset with their five children. Their youngest...
Ella’s story: our baby bear
To mum Kirsty, baby Ella was the “perfect, healthy little bundle of joy” when she...
Wiktor’s story: a battle for life
Triplets Wiktor, Borys and Alexander were born three months premature because of complications during Aga’s...
Elliott’s story: a chance to be a family
For Will and Georgina, parents of five year old Elliott, who has a brain disorder...
Orla’s story: a lovely, cheeky little girl
In her first years of life, Orla had cardiac arrests at home with her terrified...
Hope’s Story: fighting for space
Last year (2017/18) John Roden and his family were supported by our Advocacy Project via...
Zuzanna’s Story: living for today
Zuzanna, aged three, lives with an undiagnosed condition that affects her breathing and muscle strength...
