I was surrounded with mums and their new babies. But I was alone.
“We knew something was wrong when the trainee sonographer asked for her superior to have...
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Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.
Timmy’s story: “We had to manage alone”.
Timmy had Cerebral Palsy, a learning disability and epilepsy. His mum Alison explains that when they needed help the most, they were sent home without the support they needed. “Timmy had difficult health up to age 10. When he became...
Archie’s story: “It’s just excruciating for your child to die, but to be peaceful at home was really wonderful”
Archie was 16 years old when he died. He was diagnosed at 2 years of...
Charles’ story: “They were a lifeline. Any time, day or night. They were there.”
Charles was 11 when his family received the devastating news that he had a terminal...
Florence’s story: They were amazing. They came in daily and helped us throughout the night and at weekends.
At 38 weeks and 3 days beautiful Florence came into this world at 7.02am weighing...
George’s story: “They were at the house when we needed them, day or night, and were always at the end of the phone”
George was born with an extremely rare condition called Batten Disease variant CLN8. This causes...
Isabelle’s story: “They took all the strain away and made sure that we could make the most of the time we had with Isabelle”
Isabelle was just a baby when she was diagnosed with Zellweger Syndrome. A very rare...
Lady Tiffany’s story: “I lived in the hospital for three years”
“When I look back now I remember only pain and guilt,” says Stacey, Tiffany’s Mum....
Mikey’s story: Mum Chevonne and dad George are exhausted.
Every day is a bit different with Mikey, he has an undiagnosed condition which was...
