Caleb’s story: support for the whole family
We shared this story as part of National Siblings Day 2018 to highlight the special...
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Family stories
49,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.
Fergus’ story: everyday is a bonus
Fergus is 15 and was born with Micrencephally – a condition which means his head is smaller than it should be and his brain has not developed properly. Fergus is wheelchair bound, unable to move, walk and talk. He is...
Lisa’s Story: Julia’s House saved my marriage
Lisa Johnston and her husband, Jason, live in Dorset with their five children. Their youngest...
Ella’s story: our baby bear
To mum Kirsty, baby Ella was the “perfect, healthy little bundle of joy” when she...
Wiktor’s story: a battle for life
Triplets Wiktor, Borys and Alexander were born three months premature because of complications during Aga’s...
Lennon’s story: Living life to the full
Lennon Georgie Ruffles was born 12 weeks early, weighing a tiny 2lb 8oz. Right from...
Orla’s story: a lovely, cheeky little girl
In her first years of life, Orla had cardiac arrests at home with her terrified...
Hope’s Story: fighting for space
Last year (2017/18) John Roden and his family were supported by our Advocacy Project via...
Zuzanna’s Story: living for today
Zuzanna, aged three, lives with an undiagnosed condition that affects her breathing and muscle strength...
