Caleb’s story: support for the whole family
We shared this story as part of National Siblings Day 2018 to highlight the special...
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Family stories
49,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.
Ella’s story: our baby bear
To mum Kirsty, baby Ella was the “perfect, healthy little bundle of joy” when she arrived. “We called ourselves the three bears” says Kirsty; “mummy bear, daddy bear and baby bear. But as Ella got older she became known to...
Lisa’s Story: Julia’s House saved my marriage
Lisa Johnston and her husband, Jason, live in Dorset with their five children. Their youngest...
Orla’s story: a lovely, cheeky little girl
In her first years of life, Orla had cardiac arrests at home with her terrified...
Hope’s Story: fighting for space
Last year (2017/18) John Roden and his family were supported by our Advocacy Project via...
Zuzanna’s Story
Today is Undiagnosed Children's Day, and we're teaming up with SWAN UK (syndromes without a...
Frank’s story: the most heartbreaking news
In October 2012, Frank's parents Rachel and Bob were given the worst imaginable news. A neurologist...
Florence’s story: our princess
Parents Bianca and Jack made the heartbreaking decision to spend their daughter Florence's last few...
Stanley’s story: living with love
Diagnosed with the rare condition Tay Sachs at just 13 months, Stanley Murphy has no...
