Together for Short Lives
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Family stories

99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.

Tehya’s story: ‘Eating Spaghetti Bolognese at 5am’

“She was such a tiny little girl when she was born – just 3lb 10oz, even though she was a full-term baby. One day, when I was bathing her and because of the way the light was shining on her...