Together for Short Lives
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Family stories

99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.

Emily’s Story: “Whilst praying for a future, we also had to prepare for the worst”

Everyone who met Emily was instantly captivated by her bright smile and inquisitive eyes. At 17 months old, Emily was diagnosed with Rett Syndrome, a debilitating neurological condition. Sadly, Emily died at the age of 3 after receiving round the...