Baby Violet: A bright shining light
During the routine 20 week anomaly scan, a problem was identified with little Violet’s heart....
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Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.
Alfie’s story: Lighting up the room
Alfie is six-years-old and very affectionate. He loves to sit and stroke your face. He’ll say “love you Mummy and Daddy”. He has beautiful big brown eyes and eyelashes that stretch for days! He also has a very serious illness...
Dan and Elisa’s story: a short breaks lifeline
Elisa’s dad Dan gave up his career to become her full-time carer after she was...
Noah’s Story: Finding that missing jigsaw piece
Noah’s epilepsy got so bad during the Coronavirus lockdown that he nearly died. His mum...
This is. . . Cecelia’s story
When one-year-old Cecelia was diagnosed with a life-limiting condition, her parents, James and Esme, were...
This is…Alfie’s story
Alfie is 7 and has cerebral palsy caused by brain damage during a very difficult...
This is…Patrick’s story
At her 20-week antenatal scan, Victoria Langford discovered one of her unborn twins had a...
Aarvi’s story: It was like walking into heaven
St Oswalds Hospice, in the North East of England, first met parents Ankur and Neha...
Chloe’s story: We can do this
Chloe is 15 and has Aicardi Syndrome, a condition which mainly affects girls. As a...
