Children’s Hospice Week 2025: Gaby’s story
Evita’s daughter Gaby was born with half a heart – a rare condition called hypoplastic...
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening - and the number is rising. Meet some of the families we support.
Nieve’s story: “At the end of her life we were alone”
Nieve was born in July of 2007, a happy and content baby, but it quickly became apparent in weeks that things weren’t right: “Nieve didn’t hit normal milestones like other babies and toddlers. She didn’t develop the usual skills or...
Archie’s story: “I couldn’t live without their support”
This is Archie’s story, told by his mum, Laura. Archie was born extremely prematurely at...
Rafferty’s story: Support through the Kentown Programme
“We were giddy with excitement, laughing and being playful with the medical staff. We were...
Paulson’s story: “The Butterfly Fund helped us feel we weren’t alone”
Baby Paulson was welcomed into the world at only 24 weeks on 11 December 2023....
Leia’s story: “Having a diagnosis helped us feel prepared”
When baby Leia failed her newborn hearing test, first-time mum Katie knew something wasn’t quite...
Mary’s story: “I’m grateful for every day we get together”
When Mary was five months old, she was diagnosed with hydrocephalus – a condition that...
Eilidh’s story: “People don’t save money for their child’s funeral”
Eilidh passed away on a Friday aged nine-and-a-half months old. Her mum, Kaitlyn, used money...
Corey and Parker’s story: “We would be totally lost without Claire House”
For Karina and Jason, having a disabled son turned them from first-time parents into full-time...