Tehya’s story: ‘Eating Spaghetti Bolognese at 5am’
“She was such a tiny little girl when she was born – just 3lb 10oz,...
Call the Helpline
0808 8088 100
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.
Emily’s Story: “Whilst praying for a future, we also had to prepare for the worst”
Everyone who met Emily was instantly captivated by her bright smile and inquisitive eyes. At 17 months old, Emily was diagnosed with Rett Syndrome, a debilitating neurological condition. Sadly, Emily died at the age of 3 after receiving round the...
Malachi’s story: “Caring for Malachi is a continuous job”
Mum of four Sylvia was pushed to her limits when Covid-19 hit. She was providing...
Raphaella’s story: “I’m proud to be a Haven House nurse”
Nurse Raphaella speaks about her experience of working in children’s palliative care throughout the COVID-19...
Rio’s story: “I don’t know where I would be without the support from my children’s hospice.”
Happy, giggly Rio is nine and lives with his mum Nikki. He was born with...
Charlotte’s story: “Who’s going to take Aimee?”
When Charlotte Cleary was rushed to hospital in an ambulance at 33 weeks pregnant, her...
Aidan’s story: “Lockdown pushed us to our limits”
Five-year-old Aidan is a happy, dinosaur-loving boy with a vivid imagination. He was born with...
Toby’s story: “Our hospice is our sanctuary”
When the unimaginable happened, and little Toby had Covid 19 symptoms, his parents who were...
Jalene’s story: “Part of my soul left with Jalene when she flew away”
Jalene loved the Tinkerbell films and so to prepare her for what would soon come,...
