Together for Short Lives
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Family stories

49,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening – and the number is rising. Meet some of the families we support.

Ella’s story: our baby bear

To mum Kirsty, baby Ella was the “perfect, healthy little bundle of joy” when she arrived. “We called ourselves the three bears” says Kirsty; “mummy bear, daddy bear and baby bear. But as Ella got older she became known to...

Zuzanna’s Story

Today is Undiagnosed Children's Day, and we're teaming up with SWAN UK (syndromes without a...