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Eilidh’s story: “People don’t save money for their child’s funeral”

Eilidh passed away on a Friday aged nine-and-a-half months old. Her mum, Kaitlyn, used money from the Butterfly Fund towards her funeral costs.

Eilidh was a healthy and happy little girl. She fed well, she slept well, she smiled, laughed and rolled about, doing everything that babies should do. She was reaching all of her milestones.

At four-and-a-half months old, Eilidh became extremely unwell. Kaitlyn took her to the hospital where she was diagnosed with complex cardiac conditions.

We went from having a perfect home life, to living in hospital for five months. I was alone when the doctor explained to me that she wouldn’t survive.

Eilidh got an infection before a procedure and didn’t recover.

“The Children’s Palliative Care Nurse, Caroline, contacted us when we were back home and applied for the Butterfly Fund Grant on our behalf – there was no effort on our part at all. I would never have known about the Butterfly Fund had it not been for the support we received in hospital.”

Kaitlyn used the £300 to put towards the cost of Eilidh’s funeral. “The money really helped us when we needed it, as it’s not something we had planned for. People don’t save money for their child’s funeral.”


Donate to the Butterfly Fund today. Your gift will give a family like Eilidh’s a helping hand when they need it most.

Family stories