Winter Appeal 2025: Alex – the boy who loved frogs
Alex was born with complex conditions that left him needing 24/7 care. Despite his challenges,...
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening - and the number is rising. Meet some of the families we support.
Rafferty’s story: Support through the Kentown Programme
“We were giddy with excitement, laughing and being playful with the medical staff. We were...
Paulson’s story: “The Butterfly Fund helped us feel we weren’t alone”
Baby Paulson was welcomed into the world at only 24 weeks on 11 December 2023....
Leia’s story: “Having a diagnosis helped us feel prepared”
When baby Leia failed her newborn hearing test, first-time mum Katie knew something wasn’t quite...
Mary’s story: “I’m grateful for every day we get together”
When Mary was five months old, she was diagnosed with hydrocephalus – a condition that...
Eilidh’s story: “People don’t save money for their child’s funeral”
Eilidh passed away on a Friday aged nine-and-a-half months old. Her mum, Kaitlyn, used money...
Corey and Parker’s story: “We would be totally lost without Claire House”
For Karina and Jason, having a disabled son turned them from first-time parents into full-time...
Gemma’s story: “Siblings need support too”
Gemma is mum to Olivia, Teddie and Jesse. This is their story... A search for...