Nieve’s story: “At the end of her life we were alone”
Nieve was born in July of 2007, a happy and content baby, but it quickly...
Family stories
99,000 children and young people are living in the UK with health conditions that are life-limiting or life-threatening - and the number is rising. Meet some of the families we support.
Paul’s story: Our most precious moments with Kalel
Kalel was born with complex medical needs and received seven years of support at Derian...
Archie’s story: “I couldn’t live without their support”
This is Archie’s story, told by his mum, Laura. Archie was born extremely prematurely at...
Winter Appeal 2025: Alex – the boy who loved frogs
Alex was born with complex conditions that left him needing 24/7 care. Despite his challenges,...
Rafferty’s story: Support through the Kentown Programme
“We were giddy with excitement, laughing and being playful with the medical staff. We were...
Paulson’s story: “The Butterfly Fund helped us feel we weren’t alone”
Baby Paulson was welcomed into the world at only 24 weeks on 11 December 2023....
Leia’s story: “Having a diagnosis helped us feel prepared”
When baby Leia failed her newborn hearing test, first-time mum Katie knew something wasn’t quite...
Mary’s story: “I’m grateful for every day we get together”
When Mary was five months old, she was diagnosed with hydrocephalus – a condition that...