The latest policy information for families. To receive the latest policy roundup, sign up to our family newsletter here. Please sign our #SaveTheGrant petition Together for Short Lives has launched a campaign to protect and extend the Children’s Hospice Grant as a ringfenced fund directly distributed by NHS England beyond 2023/24. As a part of our campaign, we hosted a...
Together for Short Lives has welcomed some positive action by the Chancellor of the Exchequer in today’s Autumn Statement (17 November). But the charity has warned much more is needed to avert crisis for families of children who will have short lives this winter. Andy Fletcher, Chief Executive of Together for Short Lives, said: “I welcome the Chancellor’s additional cost...
Our Research Spotlight is a series that focuses on a themed literature search of new research in a particular area of children’s palliative care, together with a commentary from a practitioner or academic that highlights some of these research articles and discusses their implications for practice. The focus of this bulletin shines a light on Transition, with an editorial by...
Today (19 May 2022), we publish our new report, which uncovers shocking findings around access to palliative care for seriously ill children in England. We are also launching a campaign #EveryDayEveryNight and asking the public to sign an open letter to the Prime Minister to give all children at the end of their life, access to 24/7 palliative care at...
The latest policy information for families. To receive the latest policy roundup, sign up to our family newsletter here. Chancellor’s Spring Statement On 23 March the Chancellor of the Exchequer delivered his Spring Statement which, as the Treasury has been aiming to present it, includes tax cuts to support families with the cost of living. However, as prices rise sharply,...
Joanna has worked in Paediatric Palliative Care since 2009, having previously started her training in Paediatric Oncology. She undertook her specialist training at Great Ormond Street Hospital before being appointed as a consultant in Paediatric Palliative Medicine at Evelina London Children's Hospital in 2013. Since joining Evelina she has helped to develop the team there which provides in house and...
