See below for all the latest news stories on Together for Short Lives and children’s palliative care, or use the tags to the left to filter news stories by subject. For longer features and thought pieces you can also see our blog , or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Feb 11 2016
Parents, carers and young people needed for CQC inspections
Together for Short Lives is working with Choice Support in the central region of England to recruit parents, carers and young people with first-hand experience of children’s palliative care to join Care Quality Commission (CQC) inspections.
Jan 28 2016
Together for Short Lives welcomes bedroom tax ruling
Read our reaction to the Court of Appeal’s declaration that bedroom tax discriminates against disabled children needing overnight care.
Jan 25 2016
Government launches new framework for continuing care
The Department of Health has today published new guidance for clinical commissioning groups (CCGs) in England to help them determine whether a child or young person needs a continuing care package.
Dec 30 2015
MBE for Lucy Watts, Together for Short Lives' Ambassador
Lucy Watts has been appointed Member of the Most Excellent Order of the British Empire (MBE) in the Queen’s New Year Honours List, in recognition of her services to young people with disabilities. Since 2013 Lucy Watts has been a young Ambassador for the UK children’s palliative care charity, Together for Short Lives.
Dec 18 2015
Scottish Government launches new framework for palliative care
The Scottish Government has today published the Framework for Action on Palliative and End of Life Care. This aims to provide equitable and good quality care for everyone in Scotland and promotes increased openness about death, dying and bereavement.
Dec 16 2015
Minister offers to discuss baby mobility benefit bar
During a debate in the House of Lords last night (Monday 14 December), Lord Freud (Minister for Work and Pensions) invited Together for Short Lives to meet with him to discuss our call for seriously ill babies and young children to be given access to a key welfare benefit.
Dec 16 2015
NICE publishes new guidelines on care for dying adults
The National Institute for Health and Care Excellence (NICE) has today published new guidance ‘Care of the Dying Adult’. The new clinical guidelines were developed following criticism of the Liverpool Care Pathway and follow a consultation process in which Together for Short Lives was a registered stakeholder.
Dec 15 2015
Committee reports on the state of palliative care in Scotland
The Scottish Parliament Health and Sport Committee has published a report following its inquiry into palliative care in Scotland.
Dec 14 2015
X Factor 2015 winner Louisa Johnson sings charity single
Louisa Johnson was crowned winner of X Factor 2015 last night. The X Factor winner’s single, a cover of Bob Dylan's Forever Young is in aid of Together for Short Lives and Shooting Star Chase.
Dec 09 2015
Children’s charity backs Lords bid to overturn baby benefit bar
Major UK children’s charity, Together for Short Lives, has lent its support to peers’ bid to change the law to give seriously ill babies and young children access to a vital benefit which would help them leave their home or hospital bed.