Helping support families
Giving families, children and young people support every step of the way
We are here to make sure that the 49,000 seriously ill children and their families across the UK can make the most of every moment they have together,
whether that’s for years, months or only hours.
Children and families should have the care and support they need when and where they need it. But our research shows that seriously ill children and their families are missing out on crucial out of hours care and vital short respite breaks because there are too few children’s palliative care doctors and nurses.
We’re calling on government ministers to take urgent action to address the children’s palliative care workforce crisis.
Sign our open letter to Health Secretary Matt Hancock demanding urgent investment in planning, recruitment and training.
If you are parent or carer who looks after or knows a child or young person expected to have a short life, we’re here to help.
We support all the professionals who are there for babies, children and young people with life-limiting conditions, and their families. We bring professionals together, share practice and offer resources and tools to support your work with children and families.
Please give your money, your time or your voice, and help us change lives. Together we can make a lifetime of difference for seriously ill children, helping every family to make the most of every moment they have together, whether that’s for years, months or only hours.
No family should face the heart-break of knowing their child will die young alone. Families don’t know what the future may hold and can feel isolated and lonely. Your support can allow us to help families like the Hadmans, who lost their daughter Effie to Late Infantile Batten disease when she was just six. “Together for Short Lives was there for us, when we felt lost,” says her mum Carly.