Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre. Keep up-to-date with the latest news by signing up to our news bulletin and by following us on Twitter 

My first Father’s Day without my Elisa

Date Posted
16 June, 2023
Author
Dan McEvoy

Dan is Dad to Elisa who died in January 2023. In this special blog he shares what life is like as a parent to a disabled child, and what Father’s Day will be like this year without his daughter. I...

Best Interests – Support Resources

Date Posted
13 June, 2023

Since Together for Short Lives became aware that Best Interests was to be broadcast, we have been speaking to the producers of the programme to help prepare the children’s palliative care sector and our partner organisations for any impact on...

Carolynne shares her story in exclusive video diary

Date Posted
15 May, 2023

Streaming across our channels, every day from Monday 15 May: Carolynne and Freya's 'week in the life'. Freya has severe cerebral palsy, needs oxygen for chronic breathing problems, and is blind. She also has a huge personality – and enjoys...

Reaching more families through our new Community Outreach Project

Date Posted
2 May, 2023

There are 99,000 children in the UK living with a life-limiting or life-threatening illness and this number is rising, with those from non-white British backgrounds who live in areas of the country with less opportunities being proportionately affected. We know...

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