Since Together for Short Lives became aware that Best Interests was to be broadcast, we have been speaking to the producers of the programme to help prepare the children’s palliative care sector and our partner organisations for any impact on services or on audiences and families with children who have life-limiting or life-threatening conditions.
We have produced this list of resources to support families who may be affected by the themes and storyline of the BBC drama.
For more support, our helpline is available here.
Withdrawing life support
For emotional support – the Together for Short Lives helpline
Peer to peer support – Facebook community
End of Life Guide for Families
NHS – How to raise a concern or complaint
Siblings
Together for Short Lives – Sibling Factsheet
Rainbow Trust Children’s Charity
Sibs charity – for brothers and sisters of disabled children and adults
CBUK – Telling a child somebody has died
Being a young carer – your rights (NHS)
Ethics committees and complaints
Complaints/ raising concerns with the NHS
Patient advice and liaison service
CQC – making a complaint
E-mail: enquiries@cqc.org.uk
Website: www.cqc.org.uk
Impact on families/maternal health
For emotional support – the Together for Short Lives helpline
Together for Short Lives’ peer-to-peer support – Facebook community
End of Life Guide for Families
Support for parents – Rainbow Trust