Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally. For all our latest news stories you can also see our news pages, or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Dec 18 2015
Policy insight: December
Shaun Walsh, Director of External Affairs at Together for Short Lives, considers what the past month's policy developments mean for children with life-limiting conditions, their families and those who care for them.
Dec 16 2015
Prioritising Children's Health
Together for Short Lives has recently become a member of the British Academy of Childhood Disability (BACD). Lizzie Chambers looks at some of the highlights from their joint conference with the Council for Disabled Children on 24 November in Birmingham.
Dec 14 2015
Emergency Care and Treatment Plans
A new form records anticipatory decisions about CPR and other life-sustaining treatment and will support decision making in emergency situations where a person lacks capacity.
Dec 14 2015
Highlights from the APPM Study Day
Delegates heard the latest thinking around issues in paediatric palliative medicine and witnessed the launch of an app version of the APPM Master Formulary.
Dec 14 2015
What community engagement looks like
The Start Hospices programme aims to make cultural venues accessible to children with life-limiting illnesses.
Dec 11 2015
Queens Nurses: recognising special nurses
The Queen's Nursing Institute supports nurses working in the community.
Dec 08 2015
Lords must act on baby mobility benefit
Seriously-ill children under the age of three who rely on ventilators and other heavy equipment are being denied the right to help with transport costs – we think this should change.
Nov 20 2015
The Sun on Sunday Santa Hospice Appeal
Together for Short Lives and the Sun on Sunday are launching the Santa Hospice Appeal to give seriously ill children a Christmas to remember
Nov 18 2015
Lizzie Hornby's charming and happy son William has Edward's Syndrome, and needs constant care. Lizzie explains the challenges she faces and why access to 24/7 palliative care is critical for her.
Nov 17 2015
24/7 children’s palliative care is crucial
Having an around the clock palliative care service available is crucial to making sure that children with life-limiting and life threatening illnesses are safe, and would take some of the immense pressure off families.