Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre. Keep up-to-date with the latest news by signing up to our news bulletin and by following us on Twitter 

Coronavirus guidance needed now

Date Posted
29 May, 2020

We are calling on NHS England to publish a long-awaited guide to help children’s hospice and palliative care services meet the needs of vulnerable and seriously ill, isolated children during the coronavirus pandemic. The guidance – a standard operating procedure...

Dying to be heard

Date Posted
14 May, 2020
Author
Alex Mancini, MSc, BSc, RGN Pan London Lead Nurse for Neonatal Palliative Care, Chelsea & Westminster NHS Foundation Trust, CW+ and True Colours Trust

Today, in Dying Matters Week the focus is on babies who have died before birth, at the time of birth or soon after. #DyingToBeHeard highlights the importance of listening to families and what is important for them in the planning...

Please say her name

Date Posted
13 May, 2020
Author
Lorna Cobbett

My eyes might sting with tears the second that I say her name, but please do not let that stop you asking me about my daughter and if the tears flow, please keep talking to me. My daughter died aged...

What Covid-19 and Isolation means for our family

Date Posted
11 May, 2020
Author
Rachel Thompson

Rachel Thompson, mum to Frank, talks candidly about the impact of Covid-19 on her family, their fears and what it means for caring for a child with a life-limiting condition. Rachel’s blog, where she shares her thoughts on how Covid-19...

Grief during COVID-19

Date Posted
11 May, 2020
Author
Jane Harris and Lizzie Pickering

The Good Grief Project presents a lockdown conversation between bereaved mothers Jane Harris and Lizzie Pickering about the world they find themselves in following the outbreak of COVID-19.

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