Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre. Keep up-to-date with the latest news by signing up to our news bulletin and by following us on Twitter 

How Lockdown Has Impacted On My Grief

Date Posted
6 May, 2020
Mimi Petty

We lost our boy six months before lockdown began. Bertie was 4 years old and had gone through a terrible neurological degenerative disease called Batten Disease, which saw him loose the ability to walk, hold his head up, to swallow...

Walk with Bowler

Date Posted
5 May, 2020
Rhys Bowler

32 year old Rhys Bowler has shared his isolation diary with us, to help others grappling with issues raised by COVID-19 and beyond. In the following extracts we share with you some of his brilliant insights, irreverent sense of humour...

Foodbuy supports vulnerable families through challenging times

Date Posted
29 April, 2020

Foodbuy, a leading food procurement business, is donating over 1,400 essential care boxes to families with seriously ill children, to support them during the Coronavirus pandemic. Foodbuy has teamed up with Together for Short Lives, the UK charity that is...

Creativity in the dark

Date Posted
13 April, 2020
Hannah Hodgson

It feels as if we’re in a time where the whole world is realising its mortality. This is something that many children, young people and their families experience daily, due to the nature of their life-limiting conditions. Obviously, at the...


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