News and Comment

Our eldest son Harry was diagnosed at the age of 17 months with Spinal Muscular Atrophy. The diagnosis came entirely out of the blue and meant that our other children, male or female, had a one in four chance of...

After months of speculation, the general election has been called, Parliament has been dissolved and the parties’ campaigns are now in full swing. In the midst of all the news and announcements, I wanted to take a moment to reflect...

We are delighted to announce that our partnership with Morrisons has won the Short-Term Partnership Award at the Third Sector Business Charity Awards in recognition of the transformational impact we have achieved with Morrison in under three years.

Together for Short Lives is deeply saddened to hear of the recent death of Professor Dame Elizabeth Fradd, Vice President of Together for Short Lives. Dame Liz trained as a children’s nurse and held a variety of registered nurse, midwife...

Sacha Langton-Gilks is mother to DD, Rufus and Holly. Her son DD (David) was diagnosed with brain cancer in 2007, and died in 2012 aged 16 years. Sacha’s blog is based on the theme of her book Follow the Child,...

In her final blog update, Helena shares her time with the teams in Toronto and her final reflections. To follow along with her earlier blogs head to: Blog 1 Blog 2 Blog 3 Blog 4 Blog 5 Complex Care for...