Together for Short Lives
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News and Comment

Read the latest news about Together for Short Lives and children’s palliative care. For press enquiries see our Media Centre. Keep up-to-date with the latest news by signing up to our news bulletin and by following us on Twitter 

This is. . . Jen and Betty’s story

Date Posted
15 June, 2020

It's just a week to go until Children's Hospice Week 2020 kicks off. We'll be celebrating the 54 Children's Hospices across the UK, and raising money to suppor the vital care they provide for seriously ill children and their families....

Coronavirus guidance needed now

Date Posted
29 May, 2020

We are calling on NHS England to publish a long-awaited guide to help children’s hospice and palliative care services meet the needs of vulnerable and seriously ill, isolated children during the coronavirus pandemic. The guidance – a standard operating procedure...

Dying to be heard

Date Posted
14 May, 2020
Alex Mancini, MSc, BSc, RGN Pan London Lead Nurse for Neonatal Palliative Care, Chelsea & Westminster NHS Foundation Trust, CW+ and True Colours Trust

Today, in Dying Matters Week the focus is on babies who have died before birth, at the time of birth or soon after. #DyingToBeHeard highlights the importance of listening to families and what is important for them in the planning...

Please say her name

Date Posted
13 May, 2020
Lorna Cobbett

My eyes might sting with tears the second that I say her name, but please do not let that stop you asking me about my daughter and if the tears flow, please keep talking to me. My daughter died aged...


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