Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally. For all our latest news stories you can also see our news pages, or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Aug 03 2017
A time for reflection
The recent media coverage of Charlie Gard’s has given rise to heightened interest and discussion about children’s palliative care (both here and abroad). The case has created a high level of public consciousness, but sadly this has also led to a lot of misunderstanding or misrepresentation of children’s palliative care by some.
Jul 10 2017
A rough guide to the NICE guideline
Delegates at our recent conference heard about the development of the new NICE guideline for End of life care for infants, children and young people with life-limiting conditions. Dr Harrop has prepared a guide to the different resources accompanying the guidance and available through the NICE website.
Jun 09 2017
Children's Palliative Care is in good shape, but faces great challenges, says Claire House CEO
Jun 07 2017
Turning up the volume
We look back and reflect on how this year's Children's Hospice Week turned up the volume, amplified families' voices and changed people's perceptions of children's palliative care
May 24 2017
The role of technology in children's palliative care
Simone is the Chief Executive of the charity Lifelites, which donates and maintains assistive and inclusive technology for terminally ill and disabled children at every children’s hospice service across the British Isles.
May 22 2017
Dealing with diagnosis
The response from our large circle of family and friends to Leah's diagnosis was varied. The most helpful responses were from those who engaged with us and found practical ways to show us that they cared.
May 19 2017
The need for the Carer Skills Passport
A presentation to the recent Together for Short Lives conference provides compelling evidence for the Carer Skills Passport ensuring that parents, paid and unpaid carers of children with palliative care needs are trained to the same standards, in the same way and that the training is transferable across care settings.
May 17 2017
The politics of collaboration
If we are to ensure maximum impact on our quest for better children's palliative care, collaboration across the sector is imperative
May 16 2017
A European perspective on palliative care
There is a need to invest time and resources in education and research to help plan better children's palliative care services over the next 10 years, says Julie Ling of the European Association for Palliative Care
May 15 2017
A New Zealand perspective on palliative care
Seeking cost-efficient and cost-effective models of quality children's palliative care, to ensure that more children with life-limiting illnesses get the support they need should be key to Together for Short Lives' new strategy, says Ross Drake, from the Starship Child Health service in Auckland, New Zealand.