Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally. For all our latest news stories you can also see our news pages, or sign-up for our e-Bulletin to get regular news updates direct to your inbox. For press enquiries see our Media Centre.
Feb 27 2017
Networks Summits and the ReSPECT process
Jane Houghton describes how a presentation at a Together for Short Lives Networks Summit facilitated the development of the new ReSPECT process (Recommended Summary Plan for Emergency Care and Treatment) and looks at what's next for Networks Summit meetings
Feb 16 2017
My challenge of a lifetime!
I'm fundraising to shine a light on the 49,000 children in the UK with life-limiting or life-threatening conditions.
Feb 09 2017
My plea to the Chancellor
Leah Booth, Young Avenger for Together for Short Lives, shares her plea to the Chancellor ahead of his Budget on March 8
Feb 08 2017
A budget for those just managing to survive
Barbara Gelb, CEO of Together for Short Lives explains how Budget 2017 presents an opportunity to improve the lives of the UK's most vulnerable children.
Feb 07 2017
A bewildering array of services
Rachel Thompson's four year old son Frank has Late Infantile Batten disease, and requires extensive 24 hour care. Rachel describes the challenges of giving him the care he needs.
Feb 07 2017
For the 49,000
The launch of an All-Party Parliamentary Group for Children Who Need Palliative Care is an opportunity for MPs across Parliament to bring about the best quality of life and best quality of death for children and young people with life-limiting conditions
Jan 20 2017
The power of networks
With news of plans to set up a children's palliative care network in Northern Ireland, Jane Houghton looks at how regional networks have helped to drive improvements in children's palliative care.
Jan 16 2017
Palliative care in the community
Director of Patient Care at ellenor explains how a new pilot aims to provide palliative care when and where people need it by working closely with others local care providers.
Jan 05 2017
Happy New Year
CEO of Together for Short Lives, Barbara Gelb OBE, reflects on the challenges and opportunities that come with the new year.
Dec 15 2016
Collaborating for Safer Care
Sincere partnerships, genuine commitment to joined-up care, and robust communication will help to ensure that we are all well-informed, up to date, safe, and achieving the best possible outcomes for our children, young people and families.