Together for Short Lives is passionate about making sure that every baby, child and young person with a life-limiting or a life-threatening condition can live as fulfilling lives as possible


The experiences and voices of young people and families are vital to the success of our work. We need your help to make sure that everything we do is rooted in real family experience.

Together for Families community

If you are a parent or other family member, carer or friend of a child or young person who might not reach adulthood, you can join others by becoming a member of the Together for Families community.

As a member of our family community, you will receive Together for families, our free quarterly newsletter packed full of useful information about services and charities that can help, as well as stories from other families.

Click below to:

Join the community and receive our family newsletter by email


Join the community and receive our family newsletter by post 

Family reference group

Members of our family community can also join our family reference group. This is an email group that supports our work, and that of our partners, by;

When you’ve signed up for our newsletter we’ll get in touch to see if you’d also like to join our family reference group. Don’t worry if you just want to receive the newsletter, that is fine!

If you would like to speak to someone about how you can get involved, call a member of our Helpline Team on 0808 8088 100 or email