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We want to hear from you! Your personal experience is the most powerful tool to help us raise awareness and make change happen. If you are caring for, or have cared for a child with a life-limiting or life-threatening condition please think about joining one (or more) of our family groups: 


Family Group - Case studies | Sign me up

Share your story to support our awareness, lobbying and fundraising campaigns and reassure other families that they are not alone.  Support is at hand to help put your experience onto paper.talking heads

Family Group – Consultations |  Sign me up

Tell us what you think will improve outcomes for children and their families and we’ll include your views in our own responses to government and other consultations.

Family Group – Social Media | Sign me up

Help us by posting links and news on your own social media channels.        phone

Family Group – Research | Sign me up

Support the development of research tools or participate in a research studies.

Family Group – Events | Sign me up    

Throughout our work there are several occasions when we want the audience to hear directly from a family member - speaking or attending an event.  We’ll be there to support you every step of the way to share your story.

By signing up to a group, you will receive emails inviting you to respond to various requests.  There is never any pressure to get involved or respond.  We just want to give you the opportunity to influence developments in children’s palliative care as they arise.

Stay in touch with developments in children s palliative care